I suppose it's real now then 🙄

New diagnosis and before diagnosis
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I received a letter from neurology today officially diagnosing me with RRMS.

it never felt real until now. I guess it’s not all some horrible cock up after all. Ok then, here we go. I must have read that letter 4 times but, it still keeps saying the same thing :person_facepalming:

I’m meeting the consultant in 2-3 weeks so, I suppose we’ll discuss it more then.

Ah well, at least the sun’s out - Have a good one all x

Jon.

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Hi Jon, I’m guessing that the letter has brought mixed feelings: relief to have some certainty but some new uncertainties about what happens next and beyond ? I think that at your appointment with the neurologist he/she will talk about treatments and probably/ possibly give you a list of the ones they think would be most suitable and invite you to take the list and consider it in your own time. If you haven’t already been looking at the full range of treatments ( on the websites of the MS Society and MS Trust ) then it’s probably worth having a quick read through.

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Thanks Hank :+1:

It has caused a bit of an odd day (my dad would have been 68 today if he was still here so, not much joy here today but, it won’t last forever. I will look at that info.

Their letter today says that they strongly recommend an anti cd-20 therapy due to having had ‘quite and aggressive and Atypical’ presentation of MS .

I’m leaning towards Kesimpta because I really don’t want to be sitting in hospital for too long.

Thanks again mate :+1:

Jon.

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Hi Jon,

Sorry to hear you’ve had a diagnosis and it’s all official. You might well feel a bit odd and disbelieving, I think news like this can take a long time to sink in, even if it’s what you’ve been expecting.

There’s lots of posts about the different drugs and people’s experiences with them, and I’m happy to share my experience of Kesimpta is that would be helpful - just give me a nudge.

Wishing you all the best

alison

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Thank you Alison.

Much appreciated :slightly_smiling_face:

It is an odd feeling to be told something like that when I’ve always taken care of myself.

It’ll be ok - I’ll take some time to think on it and digest it :+1:

Jon.

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I remember so well the feeling you describe so perfectly. Welcome to the club.

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