I have had brain mri (no contrast) with white matter lesions on both sides (but not deep in the brain) I think it was many as it did not say how many. The findings was uncertain of vascular conditional degeneration OR neurological desise/ms.
Cervical spine clear, LP clear (got result his week). One clear EMG of left arm and one EMG of tibialis muscle was slight positive but the comment from neurologist was the positive emg does not represent my symtoms.
Symtoms: Stiff hip, weak right ankle, weak right arm and hand. Blurryish vision (went to eye doctor, find nothing) Bladder urgency. 2 days of bad brain fog.
Not sure of what to do as I feel the urgency of a dx.
You probably heard this story before but I feel that I need to express my thoughts and maybe find someone with similiar story.
I have been feeling that something is not right with my body the last 2-3 years. It actually started with unspecific inflammations of my genital. Only 1 another doctor could confirm with me after 9 other said it all looks normal. At the same time I had periods of sore throat that comes and goes for 1-2 days sometimes with earpain. During this time I also had pelvic pain and different sensations of my genitals, bladder urgency. The dx was prostatitis.
Prior this I have had and still have a stiff hip, probably had this for 5 years but could not put “a name” of what my weird feeling of my right leg was. I also had 1-2 random muscles aches on my right leg and arm.
My right side of bodys joints started to feel stiffer, my skin on right hand feels “tighter” it feels like there is more ressistence when straighten my fingers. After many “its all in your head” moments I developed health anxiety.
The neurological symtoms starts this year:
Earlier this year I noticed that I use more my left leg when I stand up from sitting down and noticed that right leg feels weaker, I aslo started questioning myself if my fingers feels weaker of my right hand.
So my first neuroligical appointment was because of feeling tingling sensations of left arm, most noticeable during different positions of arm. EMG Clear.
Noticed painful twitches of calf muscles but ignored them. My hand and fingers started become more painful during work out, thought it was age related (I am 35).
First dose of covid vaccine and 2 weeks after the vaccine I had huge fight with my wife and the next day it all just accelerated with tingling, crawling, twiching of my legs muscles. Foot started hit the ground very slightly but I could ignore it because I thought it is probably because of wearing slippers.
During next weeks twitching continued over my whole body. My foot was still hiting the pavement sometimes but thought it was because of uneven pavement and roads.
Headache for 2 days with painful neck afterwards and dull heahache from backside of head all the way up to center of head on my the right side for around 3 weeks with somedays being worse.
After 6 hours drive my right foot was aching and hitting the floor frequently, with one day rest I felt better again.
Back home from holiday, and right arm is sore of lifting bags during flights the day before.
I had prebooked meeting with neuro, I explain that my ankle feels loose and have numbness feeling on my face, explained the drop foot. He sends me to MRI with no contrast but says its probably stress and mentions benign muscle fasculations but wanted check up the drop foot.
Fast forward two week and I almost certain that my hand is weaker. I notice that my palm muscle (brevis) has cavity in it when flexing (looks sunken) emg clear.
Pins and needles, twitching continues. Anger issues and agressive thoughts (not normal for me)
Brainfog 2 days, I could not concentrate and feelt like I was outside of my body. Playing a simple cognitive mobile game of sorting 2 colours as fast as possible in 1 minute made me exhausted, needed to rest. This really scared me.
Tiredness that comes from nowhere and stays for few hours.
Ankle is weaker and looks smaller. When I am exercising my ankle muscles, it becomes fatigued the next day and starting what feels like a beginning of drop foot.
Balance issues sometimes because of weaker foot, slurring of words, tinnitus and another weird sound, blurryish vision sometimes. I see everything but vision still does not feel 100%.
I noticed the blurry vision feeling is more noticable while reading a text on the computer screen like when writing this book of symtoms. Difficulty planning at my work during the whole year, I thought it was due to exhaustion.
Consistent bladder urgency. Less twitches now, some days pins and needles but weak ankle and weak right arm is still there.
Numbness of hands, when the arm are in different positions, like holding phone while laying down above my face (did not have this issue before)
Coming up is MRI of spine and lumbar spine, and reumtoligst for rare desises such as Behcets desise (I do not really have those symtoms).
Thinking if I should get contrast MRI to see if there and any active lesions?
I am also wondering if other people feel their immune system is acting weirdly excepts of attacking the myelin?
Feels good to write everything down and sorry for long post.