So I say 99% diagnosed because I’m waiting for my first neurology appointment next week, the 21st, but the words my GP used when they called me in 24 hours after my MRI scan were ‘these results are highly indicative of multiple sclerosis’.
I’m hypermobile too (not EDS, just crazy bendy joints!) which is a tonne of fun when teamed with muscles that wont respond.
I’m doing my absolute best to stay positive though this as it’s strangely comforting to be able to give my symptoms a name, but having an uncertain future is terrifying too.
I think stress and cold weather may be triggers for me, as every time I’ve experienced what I now know is a relapse, I’ve either been extremely stressed or it’s been freezing outside!
I’ve read that warm weather is a big trigger, that that doesn’t seem to be the case for me so far, and it’s hard to tell if any pain is due to HMS or MS because I’ve become so used to it over the years.
I’d like to ask… how likely is it that I’ll be prescribed medication on the 21st? Do I get a choice in what I take? Will anything I’m given be affected by the HMS? Any many, many other questions that I’ll leave for another time