Hey guys… Update on previous post…still got “hug” and it’s driving me potty. Diazepam helping me sleep but I can’t shift this crushing pain in my ribs! On top of that after months of being well I’ve started to intermittently loose the hearing in one ear. It becomes muffled and I can’t hear throug it properly and sometimes I get a ringing in it too. Also have been suffering with blurred vision in one eye which has been bothering me for a few weeks. Anyone else get any of this and could this be MS related or something else? Thanks again guys for assistance, your all legends! Much Love Jojo xxxx
Hi Jojo, I know exactly what you mean with the pain issue, I get terrible pain on my right side which is worse by far at night. I am currently on Tramadol which helps but has the nasty sting in the tail in which (for me) causes dependancy problems as well as tolerance. It used to work great on low doses now it works ok on highest dose! When you are in constant pain people around you naturally lose sympathy over time but for the sufferer it gets worse in the sense that like chinese water torture it is unrelenting. Go to your GP and explain your situation and see what advice they can offer, or ask for a pain clinic appointment. I would think it would need proper investigations at least to try an find a cause for the pain. All the best Dave
Hi JoJo,
It does seem MS Symptom related; obviously The MS Hug http://www.msrc.co.uk/index.cfm/fuseaction/show/pageid/1418
Hearing possible Tinnitus http://www.avogel.co.uk/health/tinnitus/causes/?gclid=CNvUv6z5vrICFYcPfAodbnwAfw that is a symptom of MS
Your vision is probably Optic Neuritis causing Temporal Pallor (diming) http://www.mult-sclerosis.org/opticneuritis.html
As Dave say’s very important you check with your GP as they are very important senses and must be helped get better.
Good luck
George
Hi Jojo, sorry you are going through bad time at moment.
The dizziness and the deafness and ringing in ears could be related… and possibly have nothing to do with MS. Have you seen GP? Sometimes a build up of wax in the ear can cause both of these symptoms AND dizzinesss… so see GP.
On other hand, MS lesions can also cause these symptoms. I have tinnitus (high pitched sound in ears… some people get ringing), double-vision and dizziness all caused by MS. But I think the intermittent loss of hearing and ‘sometimes ringing’ sounds far more like ear problem than MS problem.
I suffer hug a lot… it is awful. I’m copying and pasting a list I made for dealing with hug. You have probably already worked out most of these tips for yourself… but may be something that will help. Hope so and hope you feel better soon.
It’s a spasm of the small muscles between the ribs. Here are some tips that might help:
· Much worse in heat
· Much worse when fatigued or stressed
· Don’t wear a bra (it irritates the muscles)
· Don’t wear tight clothing… the looser the better
· Avoid large meals… little and often is better
· Lie down in/on bed if you can… and lying completely flat often helps
· Take 2 Paracetamol… if you are not on other pain med’s
· Try controlling your breathing… deep in through the nose and slowly blow out of mouth… and try and relax whole body while doing it
· Stay as cool as you can but don’t have cold shower… luke warm is better
· Rest, rest, rest and then get some more rest (if at all possible)
· Gently rub the affected area. It might feel like it’s bruised… don’t worry, that’s normal
Pat x
sorry you are suffering so much jojo ((big hugs)), i get ringing in my ears too, or sometimes a beeping and sometimes it just takes its time to wake up.last thurs, i could have sworn my right ear wasn’t working right for the first half of the day. im not sure if i have had the hug, but i have had severe trouble breathing and these days, i just have to get a little stressed and i can feel the muscles tightening in my chest, it is also usually worse and/or comes on in heat. i have never really had pain there tho.
xx
Hey Jojo,
I too get the hugs but not the good kind! I dont take any meds for it…the only thing that has worked for me is stretching, usually bent over the kitchen table and looking ridiculous but it works for me…i’ve found i get it most if i’ve had a long, busy day and its when i go to relax…ie: sit on sofa with cuppa and x factor, i dont think mine has been affected by heat although i know thats common.
It really isnt a good feeling, a bit like labour contractions but around my ribs, so hope you feel better soon and find something that works for you x
Thanks for replies guys. Tbh I’ve given up going to the quacks I can’t be bothered as no matter what’s wrong with me they say “that will be the fibromyalgia” playing up. However I am booking a private MRI as the last Doc I saw said “I’ve got Los of patients diagnosed with fibromyalgia and then few years later been diagnosed with MS so it is likely that you could have MS anyway!” What bothers me most is what if something was truly wrong and the docs dismissed it as fibro? Oh well I’ll stick with the fibro but may become MS label for now lol. I’ll let you all know how I get on with MRI. Thanks again all Much love Jojo xxxxxx
Oh!!! It is really unbearable pain for me. I am loss my hearing ability day by day. I can’t hear anything for a time, suddenly everything is stop. Have you any idea what can I do right now? Please tell me right now. I am waiting for your reply.
Jojo
I found as well as what Pat suggested - when I’m very bad visiting my osteopath helps but not full massages - I went for a massage a few weeks ago and it was quiet intense and I was on verge of getting my neck spasm back. I also find hatha yoga which is quiet gentle improves it particulalrly if you’re taking diazepam try and stretch the area just after you’ve taken it (but gently - don’t overdo).
For me the spasticity is worse with the cold weather but overheat and I go numb with pins and needles - can’t win. MS is such a variable condition so it’s about fnding what works best for you.
It’s a shame you can’t get help from the GP - there are other meds that are better for longterm use such as baclofen which may provide you with more relief.
I’ve had quiet a few spasms (2 neck, hug and abdominal in a year and a half so I sympathise it’s a horrible sensation and very painful). Hope you feel better soon.
Reemz
X
Hello you will get that, I too have Fibro and expect the neuro to say the same, most doctors will because there isnt that much know by GP’s as they are not specialists and there is a lot of crossover factors of MS and Fibro, that’s not a good thing for the doctor you saw to say that’s really left you in Limbo.
How did the MRI go? I have my Neuro appointment on the 29th october
All the best Andy