Hi there,new to forum so thanks for having me.i seen my neurologist yesterday and was told I have lumber stenosis also rrms double whammy.My consultant has said the work begins now. I will get ms nurse appointment also some other ms clinic,msk physio appointment all pretty soon he said.Now over the past wee while I’ve noticed I don’t have the urge to pee or any feeling I’ve to poo,I have constipation.i asked Like my consultant said consultant if it was the MS or stenosis that was affecting my bladder and bowels he said I could be either,has anyone any tips about this.i don’t want to take laxatives because I don’t have any feeling I have to poo so would be afraid of pooing myself.the past 4 weeks leg pain is chronic and have been finding it pretty hard and sore to stand so have been sitting down to pee so go to the toilet every couple of hours to see if I pee,and I does work.consultant said my GP will also be in contact pretty soon also.Like my consultant said the work begins now so anything really anything you could help with would be really appreciated.thanks Malcolm
Hi Malcolm
You DO need to get movements going - worry about the consequences later! Situation gets more serious if things get impacted up there. Chances are it will be controlled rather than uncontrolled.
I was diagnosed with LSS for years before getting the MS diagnosis. They do a good job together of confusing the Docs! Ask for a MDT (multi-disciplinary team) case conference, though it sounds like they may be working together already if MS & MSk are both advising. Are urology in the loop too?
Graeme
Hi Graeme thanks for the reply, nothing was said about urology at my appointment but he did mention loads of stuff.yeah think I’ll have to do something about getting things moving if you know what I mean.to be honest when he told me about the stenosis I thought that was the diagnosis then he went on to show me head head MRI.i didn’t even know what stenosis was.i was originally diagnosed with CIS back in 2014 with abnormal MRI in 2015 normal 2016 and 2017 then my old neurologist retired and COVID happened,so I got lost in the system I think.i was assaulted at my work 17 months ago was knock unconscious,and ever since I’ve had symptoms and seen different doctors.i lost 30% of my hearing,severe tinnitus wear bilateral hearing aids, severe PTSD and lower back problems.it wasn’t until I went to my local minor injuries unit that the doctor joined all the dots and advised me to go back and see neurologist department.i phoned to get appointment but was told I’ve been removed from list and would have to go back to GP to get referred again which I did and here I am.i work in my local hospital sorry should have said before.once again thanks for the reply.Malcolm
Hi Rocenante. I sort of had similar problems with peeing except sometimes I also felt I needed to pee when I didn’t . Weirdly over time ( years) the problem has lessened but yes like you I do make a point of making a trip to the loo every few hours ( long motorway journeys became a ‘challenge) Sometimes I have to make myself relax a little and just wait for a few minutes. As I say though either I’ve just become accustomed to all this or the problem has actually lessened
Thanks for the reply