I have been reading the forum for abt a month now, but this is my 1st time posting.
I’ll just tell you a bit about myself … Im 47 and have had numerous health problems since my early 20’s, but have particually suffered the last 9 years with various ailments, which I won’t go into now coz I will definately send u all to sleep lol. But the main problems Ive actually been diagnosed with is IBS , when i was 22, ( made alot worse with the removal of my gallbladder in 2006, which has caused Bile Acid Malabsorbtion (sp?), fibromyalgia diagnosed early 2012 and im in a full surgical menopause, total hysterectomy Dec 2010.
I’m currently undiagnosed, Ive been having neuro probs since the summer 2011 starting with pins and needles/ tingling/numbness in my left foot which has spread to my calf,lower arm and hand and the same in the right side, this has been a gradual process, also suffering with a very stiff neck ( not much pain, but very clicky and crunchy) very stiff, sore hips. Also very dry and sore eyes and a dry mouth. Had bloods done my Gp came up slightly low in B12 and folic acid, had injections and tabs ,fine now. Been under a rheumatologist ( saw her April and July 2012) thought joint probs caused by menopause, confirmed very dry eyes ( put pieces of paper in eyes ouch that stung !! ) Had thorough examination by rheumy’s SHO 1st time i went, also bloods done, all fine.
When i went bk and saw rheumy in July my tingling/pins and needles/numbness far worse in left hand side. Keep dropping things, knocking things over, just cant hold things properly, much weaker in arm/hand, cant lift things that are heavy, some tripping/stumbling, also a bit shaky, my neck still very stiff. she recommended physio for neck ( which made my left side worse ) and a NCS. That came bk fine but lady doing test said go bk to GP get referred to a neuro, symptoms worrying. This took time coz moved house so had to move GP’s.
Saw neuro 7th November an awful experience, didnt listen at all, which sadly seems very common, also had brief examination. ( took longer to get boots off n on than exam lol.) Said dunno wots causing symptom, take some painkillers if u like, gonna refer for cervical MRI to tick a box… charmin !! Went bk to GP he sent me for 2nd opinion with a different neuro, he was slightly better , meaning he vaguely listened, he kept questioning me why been seen again so soon ( then u kinda know its’ pointless) Cervical MRI came bk no nerve entrapment just some wear n tear, he even patronised me abt my IBS grrr !! He said cant see reason for symptoms but i’ll refer u for head MRI, won’t find anything but might as well. (MRI on 29th Jan)
I also have worsening symptoms of overwhelming tiredness/exhaustion , stiffness in muscles, blurred vision ( went to optician in summer 2011 said i need very low magnification reading glasses (1)… got them a while ago, do help but if very tired things still blurred (ive tried stronger magnification but weirdly seem too strong) plus my general distance vision bad ,still have very dry, sore eyes which i have eye gel for ( was tested for sjogrens syndrome, came bk negative) Also get left sided headaches, and some pain in eye and face ( kinda like toothache)Plus a few times had that horrible possible HUG symptom, like hideous stitch, cant move, cant get breath, horrible. ( I meant to mention has been found im low in Vit D, was initially missed by Gp, taking tabs for a while now )
So so sorry for very long post, thanx for listening. I know there are many of u in ‘’ Limbo’’ and its helped so much reading all yr posts and yr experiences and knowing im not alone.
All the best