Good day.
Mine name is Matthew,I have hydrocephelus which was officially diagnosed in 2020 although I had this condition but it was not known !.
My medical records were not available and I have lost all contact with my mother and any other family members to help with any medical facts or information.
I am 49 years old and fortunatley have three or four friends who help me attend appointments.I am also fortunate to have the help of a marvellous organisation called the “May day trust”.To be honest without them my issues would not of been solved as promptly.I sday Promptly,trying to contact all the various organisations took time especially during Covid.
I have now being diagnosed with Progressive M.S. .I struggle to walk and I need a wheelchair,I have borrowed one for now.
My whole right side is Knackered from head to toe less than 50% strength ,much less !.
I have been told for years now by my close friends I am Autistic and am waiting to be tested on the spectrum, I have most of the Autistic symptoms.
So there you have it.
I would like to share my good wishes to everyone on the forum .
Ill be back.
Thankyou for sharing,introducing,we are not alone.
Matthew