Hi everyone. I was hoping someone can help… I’m really worried bout my daughter Jenny who is now 19 years old.
Basically, I have Lupus (SLE) and my brother had MS and died pretty much just when he was diagnosed. He always had health issues but put on a brave face and never liked telling anyone when he wasn’t well while we were growing up. We just kinda attributed his falling and dropping stuff as clumsiness. I was living in the UK and he was in Zimbabwe so hadn’t really seen him for some years before he passed away. As we have immune problems in the family I am very worried.
My daughter has suffered from migraines forever. She has possible IBS cause when she’s not constipated she’s got the runs. The GP keeps prescribing lactulose. She has joint pains which all the while she was growing up they put down to growing pains but she’s not growing any more and she still has the pains. Of late my daughter has experienced numbness in her hands and feet. Also, when she had migraines she would say everything does black for moments and she can’t see - now this happens even without migraines. Her hair is falling and she now has three egg sized bald batches on her head. She has bouts of confusion and can’t concentrate. Suffers from depression. Says she feels burning sensation on he skin. She is tired all the time and sleeps a lot of the day. She has so many issues - not all symptoms at the same time thank God but the doctors are still not taking things seriously.
I was thinking about getting her tested privately - I know it’ll probably get me into debt but I am so stressed its making me ill. Can anyone recommend a good specialist or somewhere that I can get her tested. I live in near Heathrow but would be willing to take her wherever needed to get things sorted.