Had my amazing little boy on 3rd Feb and after coming home, found out when he was 13 days old he has a rare and major heart defect. At 16 days old he had open heart surgery. Thankfully hes recovered well and 2 weeks later we are home! We have 2 more operations to have in the next 2 years though!
Its all been a lot to deal with having a baby plus everything with his heart… Obviously its been a lot of stress. I had steroids 7 weeks ago, which improved but didnt eliminate my symptoms… but NOW… theyve suddenly gotten worse than ever! Im not in full and proper contact with my neurologist yet, but i have called his secretary to try and push the matter.
My dilema is… what do i DO in the meantime?? Do I just see my GP? I dont think she will be able to do anything… are there any medicines other than steroids that can reduce the feelinga of numbness or ease spasticity or the bad balance! Ive done so well with everything up till now, but its really starting to get me down that I can no longer do so much, I cant even drive my car properly and safely!