# Help need ms advice

**URL:** <https://forum.mssociety.org.uk/t/help-need-ms-advice/21464>\
**Category:** Everyday living\
**Created:** [30 May 2014 15:15 UTC](https://forum.mssociety.org.uk/t/help-need-ms-advice/21464 "2014-05-30T15:15:34Z")\
**Posts on this page:** 6\
**Page:** 1

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**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [30 May 2014 15:15 UTC](https://forum.mssociety.org.uk/t/help-need-ms-advice/21464/1 "2014-05-30T15:15:34Z")

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Hi dx last June had a bad relapse nov had iv steriods but only recently felt like I was finally getting remission, but today I’m am extremely fatigued and recently have been experiencing at night and awaking me with completely numb/dead arms and hand then bad pins and needles- now just this afternoon I have had bad pins and needles lower limbs and feet which akso felt like buzzing, then my back had a feeling like a pulse in part of it. It has now subsided - can anyone give me advice please? Kel

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**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [2 June 2014 06:59 UTC](https://forum.mssociety.org.uk/t/help-need-ms-advice/21464/2 "2014-06-02T06:59:34Z")

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Kel, Sorry I would help if I could, but I’m not sure what you are asking for… Tracy

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**Author:** ![elljay](https://avatars.discourse-cdn.com/v4/letter/e/5fc32e/32.png) [@elljay](https://forum.mssociety.org.uk/u/elljay)\
**Post date:** [2 June 2014 07:51 UTC](https://forum.mssociety.org.uk/t/help-need-ms-advice/21464/3 "2014-06-02T07:51:36Z")

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I know those feelings, think we probably all do, how can we help ?

Ell

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**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [2 June 2014 16:35 UTC](https://forum.mssociety.org.uk/t/help-need-ms-advice/21464/4 "2014-06-02T16:35:47Z")

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Hi thank you for replying, phoned ms nurse this morning, got a Nuro apt next wed, just feel like I’m progressing quicker than expected and just need reassurance and support still find it hard to take in and seats worried as I’m a mother of two young girls x

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**Author:** ![elljay](https://avatars.discourse-cdn.com/v4/letter/e/5fc32e/32.png) [@elljay](https://forum.mssociety.org.uk/u/elljay)\
**Post date:** [2 June 2014 20:38 UTC](https://forum.mssociety.org.uk/t/help-need-ms-advice/21464/5 "2014-06-02T20:38:18Z")

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Glad you have apps sooner rather than later, suggest you write down some of the questions you might want to ask.

I always find I forget something when I see a doctor so always write notes for myself over the preceeding days then put it in order before the app.

Ell

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**Author:** ![Harlekin\_Rose](https://avatars.discourse-cdn.com/v4/letter/h/ac91a4/32.png) [@Harlekin\_Rose](https://forum.mssociety.org.uk/u/Harlekin_Rose)\
**Post date:** [2 June 2014 20:40 UTC](https://forum.mssociety.org.uk/t/help-need-ms-advice/21464/6 "2014-06-02T20:40:38Z")

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Hi Kel I don’t know if this helps, but I experienced similar to you a few months ago. After a period of feeling very well, I started to wake at night with completely dead arms and hands, even though I’d been lying on my back with my arms free. I phoned the ms nurse - mainly to see if he could suggest anything - and I had an MRI scan (results later this month). However, the pins & needles have definitely subsided & I feel much better so I really hope yours improves too. It might not be the case your ms is progressing - I hope your neuro appt goes well & you get the reassurance you need. Please try not to get too worried; stress is definitely a factor in my symptoms flaring, and that may be the same for you. I’m happy for you to PM me if you need to chat Jane xx
