I have found these forums so useful, helpful and love the support that everyone gives each other. This is my first post as I have not had the courage to start posting anything as of yet, but I must admit I am really struggling with my symptoms and how to manage them when effectively we still don’t know what is wrong. I also feel terrible that I am moaning about my health when I know some of you have had these for a long time and are still in ‘Limboland’. I am 26, work full time in an office and have a daughter aged 6 and a son aged 3.
It all began on 10th March 2013 when I started to get a dull ache in my upper arm. It felt as if my arm were too heavy and started to become numb, the worst area being at my fingers. I found this impossible to ignore as I work in an office. Ignored it until 12th March 2013 when I finally went to my GP as it had now spread to my leg and I wasn’t able to walk properly. The GP booked me in straight away for an C-Spine MRI to see whether there was a trapped nerve. The symptoms got progessively worse along with extreme tiredness and not being able to walk. On 19th March 2013, I was nearly immobile, my legs felt numb constantly along with my right arm and it felt like my back was also starting to go numb. I was at worked and called my GP. She advised me to see her immediately and was concerned, so sent me to the Medical Team at the local hospital. They admitted me with a view to have an immediate MRI. Unfortunately they were unable to obtain an MRI and I was discharged with instructions to have an MRI head as they thought it could me MS. The symtoms have been on and off since about 27th April 2013 and I seem to have full mobility back with the occasional numbness in my right hand that comes and goes. Even as I write this my right hand is tingerling! The immobility I can cope with but the extreme tiredness feels so overwelming I find it a constant struggle. It is like no tiredness I have ever felt before, even when my son was a baby and he had a range of sleeping and feeding problems. I could understand if I had insomnia but I get around 8-9 hours of good sleep a night and yet still feel like this. I have had every blood test available to check my Iron levels, B12 levels and my Thyriod. Everything there is fine. I just keep being told that I need to wait till they have the results of the MRI head before anything can be advised with regards to treatment. This is all well and good but when you have this extreme tiredness, a full time mentally demanding job and two young children to take care of I feel like I am drowning under the pressure. My partner has to work long hours so doesn’t tend to be home till after 8pm most nights.
I have looked into non medical ways to improve fatigue and I know exercise would be the best option but I have a major time issue, I basically don’t have any and when I do I am too tired and have to be in bed at 8pm. I have looked into diet but there is so much conflicting evidence I am un sure where to start.
Sorry for ranting but I feel like I am in a constant blur trying to keep up with daily life and a potencial illness. My hair is also now falling out, which I would imagine is due to stress, which as you can imagine has been really upsetting.
My next MRI is on the 19th May with the review of this on 21st May. I just don’t feel like I can wait any longer and need some help. Does anyone have any advise as to what I can do, where I can go to get help and support etc. If anyone does I would be so grateful. Again I apologise for my ranting.