Rediscovering this MS forum after a long absence, so … . . . hope I’m posting correctly?
Just have no-one I can ask - have had no new treatment for my RRMS for years - just an annual review of the 3 drugs I take to cope with a variety of symptoms. No MS nurse in my area. I consider myself lucky to be retired and, usually, able to suit the pace of life to how I’m feeling. I can be very active in the good times and just read/listen to the radio in the bad ones.
This year though I have had a number of ‘mini illnesses’ already . . . . . gastro-enteritus, 3 really bad colds, one after the other, and now, a kidney infection, being treated with anti-biotics. Each time - as well as the symptoms of the illness itself - I seem to get many symptoms which are MS related too - arm with horrible nerve pain, nasty ‘neuralgia type’ pain/soreness all over and fatigue much worse than usual!
Does this happen to you too?
Finding it very hard to explain to family/friends who expect me to recover from the mini-illnesses easily - as if all other things were equal - and not to be as ‘unwell’ as I’m definitely feeling. Am I a fraud I think - is all this just in my mind (though with definite bodily symptoms!!!) I just feel so physically ‘rubbish’!
Reading the poem ‘Please don’t think. . . . . .’ earlier, a new posting in ‘emotional’ almost made me want to add an extra line . . . . . .
‘Please don’t think because the average person finds a kidney infection relatively brief and that it will SOON be MUCH easier as the anti- biotics kick in, that that will be the same for me. Maybe I’ll be totally shattered while I’m recovering and will have a lot of hidden symptoms too!’
Would love to hear from anyone with similar experiences/remedies etc. (Sorry to moan though.)