So have had a sadly common journey, referred to neurology in 2018 PC (pre-Covid) with sleep issues and fancy leg movements, subsequently diagnosed with Restless Legs. Trailed the usual clonazepam, pramepixol and ropinerol with no relief. Asked for Pregabalin which worked then changed GP who decided it was a terrible idea.
Covid happened, so never got followed up (I really should have pushed a bit more).
Move forward to 2020 and bladder issues led me to a lovely continence nurse who gave me some exercises (duly followed but no success).
2020 autum and massive issues with bowels - GP referral to Gastro resulting in cameras up (keep squeezing) and down (keep swallowing) and a delightful CT scan after swallowing copious amounts of radiation (how disappointing that I didn’t Hulk out). Diagnosis ‘we see this often in women of your age - your GP will help’
2021 finally decide that flinching about in bed really was rather dull and sleep would be rather lovely so saw GP - test for sleep apnoea negative so off to a sleep lab.
Meanwhile legs are almost commotion level Irish dancing, hands are numb, legs like concrete, bits that should bend don’t and bits that shouldn’t bend do back to GP who suggests peri-menopause.
Referral to Papworth materialises after 8 months and off I trot to not sleep…
Randomly decided to have an eye test as my eyesight had turned to shite resulting in urgent appointment with Opthalmology who find an issue with my optic nerve.
Long story short, I’m fed up with no co-ordination so have an actual face to face with my GP next week.
Question is - I have no idea what to say, ask for or do.
If you got this far, bloody well done and hello!