Hello, new here and I'd like to share my MS journey

Good evening, I hope everyone is well.
In 2010 I had my first episode (age 22). I suffered with an acute bilateral inter nuclear opthalmoplegia. At the time this was dismissed as a viral cause so I didn’t see a neurologist. Lasted a few months and I went back to work, driving etc. but my eyes were never quite the same and I now know I have an eye movement disorder from this episode.
In 2013 when my son was apx 12 weeks old I had a second episode which affected my right side vision in both eyes (Homonymous hemianopsia) and physically my right side. I had a blood test to rule out a stroke and an MRI. Lesions were found in/ on my brain and spinal cord (neck area, not been scanned further down). My largest lesion to date is 1.1cm. I am aware of a brainstem lesion which I think effects my eye movements but I don’t fully understand lesion positioning and symptoms. After a few months this episode improved but I do have right sided weakness (mild). My bladder urgency began with this relapse.
In April 2014 I was diagnosed with RRMS but the hospital didn’t want to begin treatment because my MS wasn’t severe enough (que mental health decline).
I disagreed and began my journey to seek another neurologist who would treat me.
In 2016 I had a huge exacerbation of current symptoms which was put down as a relapse. This same year I started my lemtrada treatment.

Since lemtrada, I haven’t had any new lesions! :smile:
I have an exacerbation of current symptoms so I take life a little slower on these days but so far so good. I still have a driving licence, am still working and currently completed running (well, light jogging) 5km.
I am super excited by life and am grateful for each day.

It’s really nice to share my journey with others who understand and won’t judge me negatively. I look forward to chatting with you.

4 Likes

Welcome Sarah

You made a wise decision changing to a hospital that offered DM treatment, and glad to hear that you’ve had no further relapses since being on it.

Thank you. I believe I did.
Have a good day.