Hello, my story.

New diagnosis and before diagnosis
1

Hello everyone and thank you for checking out my thread.

Well were to start? My name is Darryl, age 25 and recencently been diaginoised with RRMS.

My symproms kinda started about 2 years ago after a messy break up with my ex (long story by it self but short story is she now a lesbian and i am not joking lol). Suffered from depression then after 4 months I got over it. Started seeing a new girl and all went fine entill I started noticing something was wrong downstairs, went to my GP had some blood tests done which showed nothing wrong. My GP thought It was all in my head and prescripted Viagra 25mg just to kick start things which it kinda did but not fully which made my girlfriend at the time think it was her so she left me. From then on just thought I will focus on my job and contuine my training to become a Team Leader and learn to drive.

Just over a year ago one night I came home from a busy day at work very tired and my vision was very blurry so went straight to bed and the next day everything was all back to normal so did not think much of it. Over the next 6 months the blurry vision was coming back more often and to a point were i could not even read a peice of paper which was right infront on me, went to see my opticians a number time (5 exactly) for full eye tests and contact lens check up and they were clueless and not very helpfull.

Failed my driving test because during the exmas the blurryness come back and I missread a sign. Finally went back to my GP, had more blood tests but this time i showed my Vitamin D was low and got referred to Ophthalmologist which he told me nothing wrong with my eyes so then referred me for an MRI scan. Waited 2 weeks for the scan then had to wait another 3 weeks for the results, I got the results which showed lesions which he said could be MS but because he was only Ophthalmologist could not diagnosed so got referred to see a neurologist. At this piont i was getting fed up just wanted answers as my blurry vission was happening everyday and the only time it was normal was when i just woke up but as soon as i got out of bed it came back so quick.

With all the frustrating with waiting and getting passed about finally saw the Neurologist and he diagnosed me with MS. My MS Nurse Kitty gave me a course of high dose steriods for 4 days for my eyes, they helped them recover quicker but did not really stop it. Now i am on Prednisolne for 3 weeks and they are working great, just think need to gets my glasses check out again.

My Nurse has talked about DMD and I think Copaxone will be good but my neurologist has talked about a trail for Anti-Lingo which he thinks i would be good for so might just do the trail.

I do now have a new Girlfriend been with her a year now and she has supported me every step of the way.

Wow sorry that was a long post but just wanted to tell my story of my MS, thank you for reading and sorry for any spelling and grammer mistakes.

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Welcome Darryl Firstly, well done on getting through one hell of a journey over the last 2 years. My journey from first symptoms to dx lasted 2 years as well. For me, this was the worst part of my relationship with what is now called ms. My ms is now 11 years old. I too am a team leader and have been for 21 years thru 3 different companies. I have been on 2 DMDs over the last 11 years, the present one is copaxone which has been working well (just 2 relapses in 5 years). Downstairs problems are common. I was prescribed ciallis at the beginning as my girlfriend thought it was her. She is now my wife. Talking is important with this condition I look normal from the outside but the inside is a different story. People don’t know how you are by looking when you have ms. The spelling is a problem with me. Thank god for spellcheck. Good to meet you Neil

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Hi Darryl, welcome. So far i have not been diagnosed with MS but they are sure I have a “neurological” condition of some sort.

What has really interested me about your post and something that i can absolutely empathise with is the extreme blurred vision. I too have seen eye specialsts and have been told that there is nothing actually wrong with my eyes as such, but rather something else is causing the problems.

Its great to hear you have done so well and have come through some tough times. Goodluck for the future and stay in touch on here, they are a great supportive bunch of people who really understand x

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Hi Darryl, i to have not yet been diagnosed with MS yet but my GP keeps putting neurological problems neck and spine, like you my eyesight keeps blurring up. Like most people eye test dont show anything. Wish you well for the future but do stay in touch on theses boards the guys and girls here are a great help and very suppot

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Thanks for the warm welcome Neil and Bunny.

Yeah I do get people say I look well which makes me do a small chuckle lol and explain what is wrong.

Aw sorry bunny to hear about not knowing what it could be, have you had a MRI scan yet? Before I was diagnosed with MS was the most frustrating as just wanted answers.