OK. First, I’m useless at socal media! So sorry if i stuff this up!
I’m 48, widowed, with one adult daughter (who i swear is more grown up than I’ll ever be!) And my pup who keeps me going!
2 years ago i was in a coma for 5 weeks with covid and sepsis. When i came out of it i couldn’t move anything accept my head. They now thing that’s triggered my MS.
I’m on a waiting list to see neuro. So I’m learning to cope with a numb foot, stiff right shoulder that’s left my arm useless. My gp has been great and it’s trying to help me but it’s hard.
I shouldn’t moan. My partner died from cancer last October so being here is a bonus!
But I’m losing me every day. I’ve always been very independent. My daughters father was a git. So i had to do everything. So now I’m looking at having to move nearer family so i can get help is hard for me.
Sorry to moan! Guess i just needed to write it all out!!
Hi @Vixxie welcome to the forums. Really sorry to hear what a difficult time you’ve been going through lately, that’s an awful lot to deal with, and you have every right to have a moan lol…
I hope you don’t have too long a wait to see the Neuro, and that they will be able to suggest a possible treatment plan.
There’s loads of information here on the MS Society website and many people with lived experience and knowledge. Just keep posting if it helps, better to let it out than keep it bottled up inside. Stress is a known aggravating factor with MS.
Thanks. I’ve been told it could be 18-24 months! I’m not being morbid but with my health issues I’m not sure I’ll still be here in 2 years!
I was coping okish! Until my shoulder froze. The pain was horrendous (give me child birth and a broken back again!) It still hurts but not as bad but i can’t use my arm. I’m right handed so 2 weeks of not being able to use it have stressed me out. And yes i know that will make things worse!! But i don’t know what else to do.
I have an amazing mum, aunt, daughter and neighbour. But i don’t like to worry then so i feel so alone.
I would tell me partner, Russ. I still do! But he doesn’t answer theses days or give me the ‘you can do this’ hug.
I’m scared. My only experience of MS was my friends mum in the late 80s. I don’t want to be like that. I don’t want to be like this either.
Sorry! You don’t know me and I’m dumping all my crap on you!! I’m not usually like this!!! Honest!!!
@Vixxie, frozen shoulder pain is one of the worst, I can definitely empathise with you there! I’ve had it in both shoulders, albeit several years apart. I won’t lie, mine did last 18 months or more but the pain did gradully decrease in severity and with it, mobility got better, but it’s not a quick fix unfortunately.
Both times I had intramuscular injections which hurt like hell but did at least relieve the pain a bit. If you are still really suffering and haven’t already asked, speak to your GP about them.
I’m glad you have good relatives you can go to for support, I know you don’t like to worry them, but you know, even if there’s nothing they can actually ‘do’ for you, sometimes being asked to just listen and be there for someone, means a lot. They may think you are coping better than you are and would love the chance to be able to be there for you.
If you wanted to speak to someone outside of the family about your loss, Cruse Bereavement Support ( cruse.org.uk ) have a helpline (0808 808 1677) which is open every day from 9.30 during the week and 10.00 at the weekend. The people on the helpline are trained in bereavement support and you can phone as often as you need if you just want to talk to someone.
I know being diagnosed with MS is scary. Mine was confirmed 6 years ago after over two decades of disparate symptoms which no one joined the dots on. But a dx of MS isn’t the same now as it was 40 years ago. Testing and medications have improved considerably since then, and there is more of a variety of treatments to choose from. Have you been given an MS Nurse yet? If yes, use her as much as you need to. If no, pressure the Neuro into assigning you one. They are the link between appointments with the Neuro and can help tremendously. There is usually a helpline you can phone if you think you are having a relapse but aren’t sure, or if you want to check some symptoms out but your GP can’t help. This site also has loads of really good information, so make use of it, and the helpline on here too if needs be. Knowledge is Power, as they say!
Thanks. Yeah you’re right. Stupid thing is if ot was my daughter I’d have a go until she told me what’s wrong. But i keep things to myself!!
I guess i need to use this site more. I need to learn to open up and not push through.
Denial isn’t just a river!!!