Hi all, my name is Cath and I’m 45. I was diagnosed back in March last year and had the confirmed diagnosis in July after an MRI and Lumbar Puncture. I received the call yesterday saying I was eligible for treatment but I have 6 to choose from. I’d love to hear what others are on and how you decided which one was best for you?
Currently very mild symptoms (pins and needles, forgetful, cant get words out)after about 6 weeks of right sided seizures affecting my hand, leg and speech in April 2021 when this journey began. I was given Carbamazepine which has stopped all the seizures.
Great to be here with those that understand this rollercoaster,
There is much to explore there, so take your time with it. If you’ve any questions, come back to the forum, many of us have experience of these DMDs (Disease Modifying Drugs) and may be able to help.
The only treatment I have experience of is Rebif, which I think has long been superceded, so you are unlikely to be offered that one.