New joiner here - thought I’d say hello and talk a little bit about my MS journey!
I found out I had MS after an optic neuritis episode about three years ago. After experiencing rather sudden blurry vision for a couple of days, I took myself to Moorfields Eye Hospital in London, where I was referred for an MRI and an LP. The conclusion of RRMS was given to me 2 weeks after finding out I was pregnant which resulted in deciding to wait on treatment until I was in my third trimester.
I started on glatiramer acetate but after my annual MRI (and getting rather depressed at the self injection process 3x a week, with the long last stinging sensation), I was moved to ofatumumab (Kesimpta).
My little one is now almost a year old, and attends nursery. One of the major downsides to ofatumumab is the increase chance of chest infections… This now seems to be a monthly occurrence due to the combination of the winter weather and the germ factory that is nursery.
I now feel like I’ve spent most of my days in 2023 with a cough which is preventing sleep, among other annoyances, and it’s making me properly miserable.
Would love to hear from anyone who is experiencing similar dilemmas about their treatment! I know (or should say, hope!) it’s doing me good on the MS front, but I question the quality of life sometimes.
Cheers, TT