Hello! I was recently diagnosed with CIS and my neurologist has put me in contact with an MS nurse and is discussing potential treatment with Ocrevus and he said that he is likely to change the diagnosis to PPMS. (There is evidence of multiple lesions on multiple MRI scans etc). My symptoms are pretty mild but when a neurologist asks you specific questions about symptoms over the last 12 months that may have been MS related it’s hard to answer as someone who is a 55 yr old male. Yes, I do go to the toilet more but is that MS related or just a 55yr old prostate? My eyesight has started to deteriorate, but again, could that be normal. I am more irritable and emotional but after a year of lockdown, working from home, not doing things I used to do and missing my friends who wouldn’t be?
Anyway, I’ve decided to start a blog so that I can start to record symptoms etc which may help me, and also be useful for clinicians. Does anyone use an on-line blog site that they can recommend? Is there one on here?