I am sorry to be doing this but i need to vent. I was dx in Feb after a very bad relapse which left me in hospital. Managed to make a good recovery, left with mild tremor, mild balance problems and cognitive difficulties but overall so much better.
Then about 6 weeks ago - BAM - another relapse. vertigo is back again, tremmor really bad, eyes gone all blurry - i could go on but i wont. I resisted steroids as my mobility was not effected and my nurse agreed this was the best idea as they are quite potent drugs. Saw my neuro last week which boosted my spirits for a while, he suggested even though i’m 5 weeks into relapse i should try the steroids as things are not getting better and im going to start DMD’s soon, so hopefully i wont need anymore for a while all being well. So started them today, i’m sure they will bring there own set of ‘fun’ side-effects and i am just fed up with the whole bl**dy thing.
I have felt like rubbish for 6 weeks, fatigued, grumpy, in constant pain all the while having to carry on as normal as i have no choice but to with the kids to take care of and a husband who works full-time. Family and friends try to understand, but they don’t really get it do they? If i hear one more person say ‘oh yeah im a bit tired too’ i wont be held responsible for my actions!
I try and be positive and i know it will pass in time,and that i have it easy compared to lots of people, just finding it hard to find the extra cheer today and thought if i had a good moan you would all understand where i’m coming from.
Hope you are all having a better day, again sorry for all the self-pity!