Been called forward for MS research before they have officially been diagnosed?
I received a letter last week requesting that I take part in DNA testing due to having MS.
I’m still awaiting my first Neuro’ appointment ~ and although I’ve had an MRI which states that the findings are consistent with MS, I’ve had no formal or official dx.
Karina.x
Mmmm, you are right to wonder howcome you got this letter. i think I would be asking how/where they got their info. Mmm indeed?
luv Pollx
Normally the wan***s can’t manage the process of writing a letter and sending it to you. On this occasion they try to recruit you before anyone has had the good manners to sit you down and give you a diagnosis and explain your options.
How would they like to be treated like this??
makes me very cross Karina and I think it’s an awful thing to have happened.
I think you should take it to your GP and complain…KAren/Rizzo has published how to raise an official complaint before and I would be tempted to go that route.
In the meantime, sending you a big (((((((hug)))))
Love Gillian x