I have been waiting for a diagnosis for 18 months. Had clear brain MRI, after left foot went numb. I have since progressed to numb skin on left leg, groin, arm and both hands, my muscles twitch and I get severe stabbing pain on side of head. Recently, good leg going numb and I walk sometimes with a distinct limp. My neuro has said not ALS and probably not MS. Had MRI of lower back and neck and awaiting results. I am terrified, as weeks go by I am becoming increasingly twitchier and numb. Left arm going weaker, neuro keeps ordering tests and not really telling me why, he talks a lot but doesn’t say anything. Losing my mind slowly !!!
Sorry it’s got tough 
It is horrible, the waiting, and feeling that you’re deteriorating in between.
Part of me first thought maybe I could just come to terms with the in between and not knowing…
a bit of a Schrodingers cat thing…that nothing actually becomes real until you observe it anyway.
But then everything says that if it is MS the quicker you can start on meds the better to slow down
the course of it and it developing, and so I really do want to know for sure and just try and stop the deterioration.
Like you, things just seem to keep developing further for me, I’m just hoping it means next week, when they do a scan
that it might mean something will actually show up if it’s active right now…
However, you have got further than me and ended up with the right dr, it’s great you have a neuro, and he’s not fobbing you off but doing tests, so he’s actively seeking to find out…I hope you get some clarity soon.