I have been feeling quite low over the last few weeks. Fatigue has been bad and I’ve not really felt like doing anything other than slump in front of the TV.
I went to a fatigue course yesterday run by the MS Nurse and an OT. One of the things that they said really struck a chord with me. They said that if you are not careful MS is about giving up things – especially leisure activities and that it is important to fill these gaps with something else. I realized that since I moved house and gave up what few activities I did have I haven’t replaced them with anything.
I’ve used excuses about access problems and fatigue to keep me at home and I am in danger of becoming a blob.
This jolt plus today’s bit of sunshine has got me motivated. I hope to sort out a new outdoor wheelchair this week (OT assessment on Tuesday) and I am determined to become part of my new community. I have let disability hold me back but I’m not going to do that anymore. I have as much right to attend all the festivals etc as everyone else and I’m not going to let the crowds put me off. If I roll over a few toes – so be it. I have let MS make me timid – well I’m going to give THAT up.