Not been on here for a while but decided to smile, carry on and not think about things! It was working up until January too!
Well things have changed recently.!
To fill u in, incase u dont remember me, i have been diagnosed with partial myelitis (oct 2012) and it explained all my symptoms and am being seen again end april…so not long. The neuaro wil then decided if i need more mri or tests to see how things are going. The problem is, i am not better and am actually getting worse!
I now have a limp…my left leg is very painful. It constantly twitches, aches and gets sharp shooting pains, but the worst bit is my big toe on the same leg. It still goes white in bath but since Jan it has been getting its own sharp pain like u stuck a needle under nail! it hurts all time but the needle pain is unbareable !!
Last week i didnt get much sleep at all as it was hurting so bad it kept me up for 6 nights straight. It is better this week but it still stings kinda? If that makes sense? The thing is, i now limp, i pee the smallest and slowest amount but i constantly need to go, the buzzing is back, my left side is still half numb (no change) and i still vibrate and have a tremor (alhough the gabapentin has improved this by half). I dont feel better even on tablet and i slower and brain is def thicker, forget loads of things and say the wrong word to what i mean to say. Hubby is stressed with me forgetting things and then i get stressed and forget more things!
To top it all off, since i started the gabapentin lots of things improved, shaking, tremor, buzzing and even my sex life improved! But i now cannot hold myself in any posistion or anything as my left leg shakes then gives way, my left leg has alot of muscle wastage (its really quite alot thinner) and i have a weird red bruise on underside of my left toe, that gp says maybe a sore? but not sure what it is! So i have to struggle on til i see neuro in few weeks.
Feel more like 60 than 39 right now. Tired all time, symptoms getting worse, and i never really improved from March incident last year when this all started. Feels like i just getting slower and worse. Its slow progress but def worse! What will i be like in 6 months? It worries me that i am not improving at all and i feel like i am declining slowly but surely.
Any advise helpful, oh and i have a very painful left thumb. I drop stuff and it wont un clench to pick or grab anything. As i a left hander it really causes me issues! Mostly this is all on my left side but i worry that its not going away!
Cheers for anything you can adise…starting to get woried!