im knew to this forum/website/whole thing in general. I’ll try start at the beginning. My mums sister was diagnosed with MS at a young age (19/20ish). This was 30 years ago so I’m surprised she got a diagnosis so quickly but with her MS she had a rare side effect to it which brought on seizures. This was only confirmed at her postmortem because she died due to taking a seizure in her sleep. At first she was treated for epilepsy because they didn’t know until after her death that it was linked to her MS, as I said this was 30 years ago so things may have been wrong or have changed from then.
my mum always told me my auntie had MS and about her death but doesn’t talk very often about it so I don’t like brining it up with her so I’m left with no one really to talk to about this…
i have been experiencing a lot of symptoms that appear to be symptoms of MS - extreme fatigue, dizzyness, loss of memory, stiffness in my legs/hands and loss of balance occasionally resulting in falling… so I finally stopped ignoring it and went to the GP today to discuss this. I explained my family situation and although I know MS is not directly inherited I also know that it poses more of a risk of having it, although it’s a slim percentage. I explained my symptoms and that I thought it could be MS. The GP examined my legs, arms, etc… Told me to stand in awkward positions, bend my arm back, lift my legs up. After the examination she told me she was referring me to physio because she believes it’s hyper mobility (I’d never heard of it) so when I got home I went on the nhs website and typed it in… Problem is I only have two of the symptoms for this which is joint stiffness and fatigue and after reading it I felt annoyed that i accepted her diagnosis so quickly.
I now feel I’m back to not really knowing what’s going on and how to proceed. I’m not one for going to the doctors often and now I’m feeling so let down I’m not sure whether to go back and persist that it’s something else. Hyper mobility doesn’t explain why I’m getting all these other side effects like falling and memory loss. HAS ANYONE ELSE BEEN TOLD ITS THIS BEFORE A MS DIAGNOSIS???