Genuinely unable to accept I have MS

I’m seriously having a hard time. I know most people get diagnosed then push through the end. But not for me. I’m 18, and my life is on pause. I never had a life to begin with because I have no friends. But my life is on hold especially now. I’ve been crying all day non stop for months now. I lay in bed and wait. I have no motivation to do anything due to Ms.

I simply have given up on life because of Ms. I’ll never get married or find a partner, I’ll never have friends, I’ll never have a social life. My symptoms have taken over my body. They’re so bad, and my nerves seriously have ruined my life. My life has been terrible especially now. I regret when my symptoms weren’t so prominent, I regret wasting my life away. But I’m still just a new fresh adult. As I’ve just recently turned 18, and if I’m disabled in 10 years I’ll be TWENTY EIGHT. Not even thirty yet.

Hello @Lifesucks I am so sorry you feel like this and thank you for opening up on this forum. MS does suck and it is hard as you are so young but there are a lot of treatments out there that can help me.

Have you spoken to your consultant or MS nurse about treatment options? It is not a given that you will be disabled in 10 or 20 years, drugs can reduce the chances of progression.

Why do you not have any friends, am sure you have family and people around you that care about you and love you. Do talk to them and let them know how you are feeling.

This forum is a great place for support but you need to talk to people face to face.

Take care of yourself and focus on the positives in your life :slightly_smiling_face:

Well! You certainly seem to have decided that the very worst of possibilities is coming down the road fast!

So, here are a few points and fact for you. A) it’s pretty rare to be disabled in 10 years! I’ve had MS for around 18-19 years and sure I can’t walk for more than 10 straight mins or so but I still get out and about! Enjoy meals out, cinema etc! B) about 5 years after diagnosis I got married and am still very happily married C) have travelled to the Arctic and watched Polar bears and D) just as an example we are wondering about a short holiday in Estonia- might be difficult but ……..All this and I’m on one of the very early and least effective Disease Modifying Drugs/Treatments

So! Sorry for being blunt, but I think your biggest challenge isn’t MS but your mental health.

Can you tell me- have you started on a Treatment?

My advice and guidance to you is: see your GP about depression and anxiety; have a look at the website of ‘Overcoming MS ( living well with MS ) and start following the general advice etc in that or similar advice on the NHS; start setting yourself some clear objectives for living the best life you can inspite of MS.

MS is a s*** but it is most certainly not the end of your life!

So, tell me - what do you want to achieve over the next 1 year, 2 years, 5 years?

Go for it! It might be difficult but you can do it !

1 Like

I’ve not started yet, I’m newly diagnosed. But I’m going to hop on ocrevus, the issue is I’m having a slight trouble with my insurance. And it’s expensive.

My nerves affect me the most so far. I wake up multiple times a night with numb limbs and today numb sciatic nerve. My whole nerve pathway, and twitching is bad on my face. I can’t sleep anymore because of waking up 30 times with numb limbs :frowning:

The DMT of choice here has a chance of causing breast cancer I need to discuss that with my neuro. I just saw it online. In the next years I hope I can make friends and maybe even a relationship. Both are unlikely it seems for me. I have autism and I’m socially anxious.

It’s good that you can still walk without assistance I hope I could too. It’s different for all that’s why I’m so scared.

I’m going on treatment very soon, I just have a bad feeling I will be disabled I’m really scared. It’s so hard to deal with especially as a young adult. I’m in high school but going to university this year. And it’s just hard for me to navigate through this. My life has newly started and seems like it’s already finished.

I’ve had nothing but awful things occur in my life. I used to pray everyday for a friend when I was a child because I was bullied and had none. Nothing good came out of my life I was hoping to redeem myself but now I have multiple sclerosis. It truly does feel/seem to me that I am cursed. I am someone who is born to suffer.

I have no one that cares about me irl. Sure I have some people in high school that I occasionally talk to but only in class. After school ends they never return my texts and never choose to hang out with me. And when another friend is there they talk tot hem and leave me. When I was a child I had nobody at all. In elementary school I had absolutely no one. I prayed everyday for a friend. It was very bad. I still get bullied in high school in one class especially.

And I always suffer from Ms, and the bullying is really affecting me. No one in that school cares or knows I have Ms. Only my mom and sister know. And none of them care. My sister is too busy going out partying with her friends and boyfriend to care. And my mom is working and when she gets home is on her phone all day watching things.

I’m isolated and alone

I wish I had a friend to go out with but I don’t. Absolutely no one wants to hang out with me. I have no social medias everyone else does. And I have autism.