Genuinely unable to accept I have MS

I’m seriously having a hard time. I know most people get diagnosed then push through the end. But I have a difficult time accepting anything :frowning:

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Hello @Lifesucks I am so sorry you feel like this and thank you for opening up on this forum. MS does suck and it is hard as you are so young but there are a lot of treatments out there that can help me.

Have you spoken to your consultant or MS nurse about treatment options? It is not a given that you will be disabled in 10 or 20 years, drugs can reduce the chances of progression.

Why do you not have any friends, am sure you have family and people around you that care about you and love you. Do talk to them and let them know how you are feeling.

This forum is a great place for support but you need to talk to people face to face.

Take care of yourself and focus on the positives in your life :slightly_smiling_face:

Well! You certainly seem to have decided that the very worst of possibilities is coming down the road fast!

So, here are a few points and fact for you. A) it’s pretty rare to be disabled in 10 years! I’ve had MS for around 18-19 years and sure I can’t walk for more than 10 straight mins or so but I still get out and about! Enjoy meals out, cinema etc! B) about 5 years after diagnosis I got married and am still very happily married C) have travelled to the Arctic and watched Polar bears and D) just as an example we are wondering about a short holiday in Estonia- might be difficult but ……..All this and I’m on one of the very early and least effective Disease Modifying Drugs/Treatments

So! Sorry for being blunt, but I think your biggest challenge isn’t MS but your mental health.

Can you tell me- have you started on a Treatment?

My advice and guidance to you is: see your GP about depression and anxiety; have a look at the website of ‘Overcoming MS ( living well with MS ) and start following the general advice etc in that or similar advice on the NHS; start setting yourself some clear objectives for living the best life you can inspite of MS.

MS is a s*** but it is most certainly not the end of your life!

So, tell me - what do you want to achieve over the next 1 year, 2 years, 5 years?

Go for it! It might be difficult but you can do it !

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I’ve not started yet. My nerves affect me the most so far. I have autism and I’m socially anxious. It’s different for all that’s why I’m so scared.

I just have a bad feeling. I’m really scared. It’s so hard to deal with especially as a young adult. I’m in high school but going to university this year. And it’s just hard for me to navigate through this.

I’ve had nothing but awful things occur in my life.

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I have just read your post and really feel for you.
Being diagnosed with MS is a scary thing but at such a young age it it so much worse.
I can just imagine how frightened you are as I know I was but if you can stay positive.
The treatment you are starting is a great thing which will hopefully keep you as you are for a long time.
I get my 6 weekly infusion of Tysabri and often meet a lot of people on Ocrevas who say it has been life-changing for them.
On the other side of things. I can only imagine being in a group and feeling bullied/left out must be awful but you are a strong person who can and will rise above these folk and meet the sort of people just like you.
Never give up.
Much Love
Maryx

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Is there any groups you could join with regard to meeting new friends.xx

Well , and apologies if the following sounds patronising in any way - mark it down to a 71 year old male git trying to talk to an 18 year old :smiling_face_with_sunglasses:.

I have no idea what it’s like being autistic and again I apologise from the bottom of my heart if I say anything at all insensitive. I do however, remember what it was like being 18 : very unsure of myself , and yes socially awkward except among small groups of people I knew. I had friends that were girls but only as part of the group. I was totally useless when it came to anything more than that (didn’t have my first ‘girlfriend’ until 20 and that lasted for a grand total of …………….3 months followed by a period of misery , my broken heart etc😢 ). I do remember the emotional uncertainty, doubt and pain of being young. I’m telling you all this as a way of saying that I think some ( a lot ?) of what you are saying and feeling is pretty normal for young people - part of growing and exploring and , in time you will find your place.

(I’m just rambling here but god I remember the highs and lows of my younger life and the intensity of it all. Still am a bit like that but not with the same unsettling intensity! One thing that has stayed with me all these years is my love of ‘nature’)

I really do wish you well! Sorry if the attached link is in anyway patronising or insensitive but I hope you find it at least informative and also helpful?

I’m an aging old guy who has ‘been round the block a few times’ and has had his share of unhappiness, disappointments and struggles so I feel I can say this - you strike me as being pretty smart ! . Yes, a diagnosis of MS knocks the stuffing out of you - even the strongest and apparently most confident - but you will make it through what seems like an impossibly difficult time.

And believe me when I say that disease modifying treatments these days are a lot better than when I was diagnosed !

In terms of your autism and again apologies if I say anything at all insensitive , but I guess that we are all different to each other and I bet you have strengths and good things about you that others don’t have.

Take care and - be kind to yourself!

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