Hi everyone, I have found out today that I have MS and that I will now have more tests and a lumbar punch to confirm the level of ms.
Reading some of the other posts I feel blessed it’s only took 9 months however for the last 9 months Iv suffered with constant pins n needles on my right hand. Got prescribed all sorts however I have a tolerance to morphine so that stuff didn’t do anything!
Today my DR said that the scans etc now point that I have ms.
So googled it and here I am with others who have been there done it so to speak.
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Hi Adam!
Welcome to the forums, this is a great place to offload all of the stuff that floats around in your head whenever you need to. Hopefully it wasn’t too much of a shock for you getting the diagnosis, it took me a few months to get my head around it. When I was first diagnosed I asked my neurologist what sort of ms I had and he told me we’ll probably know when we look back in about 10 years, one of the things I’ve struggled with most is that any kind of prognosis is non-existent with MS. It’s probably what I’ve needed this place for more than anything else because I think it’s only other people with MS that get it. They say that when you’ve met one person with MS you’ve met one person with MS, because no two people are the same so at least on here chances are you’ll find somebody that’s got at least one of the symptoms that you’re trying to find out about. There’s a lot of Great information out there, the places I’ve found most useful are the ms society website, the MS trust website, shift MS, Twitter (it’s great for searching for symptoms and treatments and finding people who know their stuff, though lots have left now and I’m not that’s familiar with blue sky yet), and good old dr Google. Hopefully you’ll be able to start on a disease modifying therapy soon, there is a shed load of information about all of the different types that are available but to be honest your neurologist and MS nurses Will probably narrow the choices down for you once they know more about your Health so don’t spend too long investigating them all yet. Probably the most useful thing you can do is to start writing down all the questions as they appear in your head. A lot of them you might find answers for while your browsing the forums, and probably you’ll get some answers from here as well, but any that are still unanswered you can take long when you see your consultant. It took me years to remember to do that, even after kicking myself every time because I’d forgotten again!
Look after yourself
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Welcome to the MS community - I was diagnosed over 20 years ago & whilst I still know I have MS, I have kept fairly stable. As said here there is loads of information on, what is, a complex condition - just be careful with google, as there is alot of nonsense out there about MS - take it one day at a time & keep in touch with your MS nurse - they are a great support (generally) - take care & stay well
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