How interesting! Had quite a long discussion about FND with my neuro at my last appointment - even though I don’t have it!
His next patient had not turned up, so we had time for a bit of unrelated chit-chat. Somebody learning English had asked me the difference between an illness and a disease. That one had me foxed, so I said: “I’m seeing my doctor in the morning; if there’s time, I’ll ask him!”
And there was, so I did. And that’s how we got onto FND. In his opinion, a disease is when there’s objective evidence of a disease process, or organ damage. But somebody can be ill, yet not show any objective signs of disease. Depression would be one example, but that doesn’t mean only psychological illnesses qualify. FND is another one where there’s nothing you can point to to say: that’s what’s damaged; that’s the disease!
If it’s any reassurance to you (not that you have my neuro, I don’t expect), he took it extremely seriously, and he was very interested in it as a study area, and definitely didn’t think FND patients are crazy, or making it up. I know some FND patients feel they get short shrift, and are suspected of “putting it on” - that was certainly not his attitude, so there are people out there who are very interested, and take it seriously.
I’m almost sorry I can’t contribute to the research, because all it would find out was that I have MS - duh! So not a suitable candidate.