First GP appointment to discuss symptoms blamed on my Autism

Hi everyone

For about a month I’ve been having what I believe to be are possible MS symptoms. I should add also that I’ve had foot numbness for years but never thought anything of it until my new symptoms started showing.

Basically, I’ve been having numbness and tingling on the left side of my face, plus tingling and numbness on both feet plus my legs and occasionally my hands. I also have the feeling of bugs crawling on my head and sometimes other parts of my body.

The other big thing I’ve been experiencing is constant light-headedness 24 hours a day and extreme lethargy. Even after hours of sleep it feels like everything I do is a marathon. I barely want to do anything because it feels so bad.

I went to an out of hours appointment the other day after phoning 111, because I honestly felt absolutely awful. They tested my blood pressure and blood sugars, which all came back fine, but noted that my balance was a bit off. I also struggled with the heel to toe test.

Out of hours concluded I wasn’t in any medical emergency, but have told me to make an urgent appointment with my GP.

Well, I spoke to my GP today and he seemed very dismissive. He told me he has ‘no idea’ what it could be, and said that - because of my Autism - I might have a tendency to overthink things. I thought his comment was very unnecessary, and that my Autism has nothing to do with why I feel rubbish.

He’s ordered me a blood test, despite my previous blood tests from a month ago being normal.

I was told that if my blood test was normal, that I might just have to, in his words, ‘learn to live with it.’ Because of his comments I’ve requested to see another GP, because I really don’t think his comments were fair or needed.

I’ll accept the possibility of having Vitamin B12 deficiency, but if my bloods come back normal then I’ll just have to hope the other GP doesn’t have the same dismissive attitude.

Has anyone ever been in a similar situation? What do you advise?

I think a consultation with another GP would be a good idea.

I have heard it said that a big part of any GP’s working day is explaining to people that whatever’s the matter is something they’ll have to learn to put up with, and I do not doubt it. But that is surely only after investigating what the matter is! Have a chat with a different GP.

That sounds really cruel of your GP. I am autistic too and I would be upset if my symptoms were attributed to that. In fact, I already assumed that a lot of my symptoms were autism for a while (fatigue, thinking my nerve tingling was from sensory issues) until I had symptoms that were no longer explainable (internal tremors, weakness, pain). I hope your next doctor listens to you.

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