Getting really fed up now!!! In pain all over … look a right mess and feeling a little down at moment, put about 2 stone on in weight!!! Everytime I have a bath or shower come out in a rash over body and face which fades within an hour… Feet are buzzing!!! Sorry for ranting just wish this would all go away!!! Not so happy Vickie x
Snap!! I am hoping some of the weight gain is medication and the fact cant manage the same level of gym classes. Its horrible being in pain all the time too. But, it does help to know i m not the only one going through this. Try and focus on what you can do and just take one day at a time x
Thanks amc1 and polar bear,
thin
k my weight gain is down to everything you’ve said… meds, lack of exercise ect and I have a quite healthy diet!
Hoping now that ive been given a stick that I can get out more which should help with weight gain hopefully.
I used to be very active and would love to go to gym again, the only time I go to the gym now is when I take my daughter to gymnastics class… :-).
Im currently im limbo land… finding things quite difficult., its taking me ages to write this reply 
my mind just goes blank!
Think Im whittling abit because im due to have some nerve condution tests done next tuesday to which im not looking forward too…
Wishing you both well!!
Vickie. X
Im so glad ive found this forum too Jen! Its helped me so much… id love to respond to others in the same place as me… but find it difficult to put stuff into words most of the time… Not sure which tests but the info which came with letter says nerve conduction studies and electromyography. . Did ask when I phoned the bookings line but the lady said she couldn’t read the nuros writing. . Lol But im sure I’ll find out on Tuesday. . Took a while for me to get docs to refer me… but thankfully and hopefully getting getting somewhere now!! Jen are you in limbo or have you had a dx if you don’t mind me asking? Vickie x
Sorry to hear this, im kind of in same situation n getting fed up of it. I know im not the only one going through it but can easily put you in a low lonely place. Again ive put on weight not impressed about that cutting out loads of food but not enough energy to attempt gym anymore I know its horrible and my brain wants to do soo much my body just cant do. Frustrating!!!
We are not alone though and we can keep fighting 
No we not alone tickles7128 Yes very frustrating at times but my 10yr old keeps me going and I will keep going for her sake… Just plod on and take each day as it comes… Vickie x