I’m finding it really frustrating dealing with the neuro department at the hospital and am getting really fed up as I just want some help with these damn symptoms now… I went to see a registrar, who said I undoubtedly had a CNS disease, probably MS, and referred me for an MRI and to ENT as I’m getting weird hearing problems too… Went and had the MRI in early December, and since then they’ve cancelled two neuro appointments due to ‘unforeseen circumstances’ and promised to rebook … No news, so I rang them - they say the results haven’t been looked at yet and that they don’t know if I’ll need another appt!! I would have thought that with a definite CNS disease that was a no-brainer?
I’m trying to do things that will make me better - I’ve stopped smoking, taken up swimming, have been to yoga, am taking high dose vit B12 and D3 daily and am eating healthily, but need advice - the swimming makes my neck ache after just a few minutes so I have to keep stopping and wondering if I’m damaging myself rather than helping, and the yoga keeps making my vertigo come out - when I move my head forwards and backwards the world starts spinning, and again I don’t know if I’m making things worse or if I should push through the dizziness (though I also keep falling over which is embarrassing - I feel like Mr. Bean at the back of the class!). I wonder if I joined a class that’s too energetic (it’s vinyasa yoga) and if I should get into a more chilled form, or even try something else that doesn’t involve too much moving my head about - any advice is v welcome and needed! I just want to build my core strength, stamina, and fitness levels in general.
I’m so annoyed wondering if I’d seen someone sooner then maybe they could have given me steroids or something that would help (I’ve had them before for asthma and had no bad side-effects - just a lot more energy) and then I wouldn’t be left in this mess. I’m even wondering about just buying steroids from online, which I’d never normally do.
I don’t want to stop exercising but really don’t know what to do. My husband is talking about complaining to the hospital via PALS (and he’s the last person to do that sort of thing usually) - mainly to get noticed and hopefully make them do something.
Sorry for long rant but am just so fed up. Probably feeling worse as I just started a new job and am just tired and emotional tonight… Thanks you lot - good to know you’re there,