# Fampyra

**URL:** <https://forum.mssociety.org.uk/t/fampyra/3922>\
**Category:** Everyday living\
**Created:** [10 June 2013 14:48 UTC](https://forum.mssociety.org.uk/t/fampyra/3922 "2013-06-10T14:48:15Z")\
**Posts on this page:** 7\
**Page:** 1

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**Author:** ![Lucy\_Mold](https://avatars.discourse-cdn.com/v4/letter/l/db5fbb/32.png) [@Lucy\_Mold](https://forum.mssociety.org.uk/u/Lucy_Mold)\
**Post date:** [10 June 2013 14:48 UTC](https://forum.mssociety.org.uk/t/fampyra/3922/1 "2013-06-10T14:48:15Z")

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Has anyone tried Fampyra? I am frustrated that although this has been approved by NICE it isn’t available on the NHS where I live. If I try it and it’s a success I will struggle to pay for it. Thanks all, Luce x

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**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [10 June 2013 15:11 UTC](https://forum.mssociety.org.uk/t/fampyra/3922/2 "2013-06-10T15:11:10Z")

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look at [thecompounder.com](http://thecompounder.com) website at 4ap and ms

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**Author:** ![Sewingchick](https://avatars.discourse-cdn.com/v4/letter/s/3da27b/32.png) [@Sewingchick](https://forum.mssociety.org.uk/u/Sewingchick)\
**Post date:** [10 June 2013 16:01 UTC](https://forum.mssociety.org.uk/t/fampyra/3922/3 "2013-06-10T16:01:03Z")

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It hasn’t been approved by NICE. They haven’t looked at it and they’re not planning to. Your local health authority has to decide if they will fund it - I know Dudley will but most others won’t. There have been several threads on this and I have posted numbers for Healthcare at Home and BUPA Homecare, who will supply you with Fampyra for around £180 for four week’s supply, with the first month free. If you can’t find the thread and you’re interested in paying for it yourself, post saying so and I can put the numbers up again.

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**Author:** ![chris52](https://avatars.discourse-cdn.com/v4/letter/c/4491bb/32.png) [@chris52](https://forum.mssociety.org.uk/u/chris52)\
**Post date:** [11 June 2013 07:31 UTC](https://forum.mssociety.org.uk/t/fampyra/3922/4 "2013-06-11T07:31:48Z")

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Hi Lucy Take a look a posts in PPMS forum lots on Fampyra recently? Chris

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**Author:** ![liamsquash](https://avatars.discourse-cdn.com/v4/letter/l/50afbb/32.png) [@liamsquash](https://forum.mssociety.org.uk/u/liamsquash)\
**Post date:** [11 June 2013 09:02 UTC](https://forum.mssociety.org.uk/t/fampyra/3922/5 "2013-06-11T09:02:21Z")

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Hi Sewingchick,

I’m very interested in trying Fampyra and would greatly appreciate you posting contact numbers for BUPA and Healthcare At Home, so that I’m ready to discuss this possibility with my Neuro when I see him next.

Many thanks for your kind help and warmest regards,

Dom

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**Author:** ![Sewingchick](https://avatars.discourse-cdn.com/v4/letter/s/3da27b/32.png) [@Sewingchick](https://forum.mssociety.org.uk/u/Sewingchick)\
**Post date:** [11 June 2013 10:56 UTC](https://forum.mssociety.org.uk/t/fampyra/3922/6 "2013-06-11T10:56:54Z")

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This is the post I put on ‘Fampyra for £190 a month’.

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**Author:** ![whammel](https://dub1.discourse-cdn.com/mssociety/user_avatar/forum.mssociety.org.uk/whammel/32/1005_2.png) [@whammel](https://forum.mssociety.org.uk/u/whammel)\
**Post date:** [11 June 2013 11:34 UTC](https://forum.mssociety.org.uk/t/fampyra/3922/7 "2013-06-11T11:34:10Z")

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There is some useful information on the Barts & London site.

[http://multiple-sclerosis-research.blogspot.co.uk/2013/05/private-prescriptions-with-in-nhs.html](http://multiple-sclerosis-research.blogspot.co.uk/2013/05/private-prescriptions-with-in-nhs.html)