Forum

Emotional Day

Well I was warned earlier this year when diagnosed it would happen and today it has. Sobbing this morning worrying about what will happen in the future and who will look after me in the future if things go downhill as my parents won’t be here forever unfortunately. My husband was brilliant and said he would be here for me and always will be but I was in such a state that I started going down the road of well you will be at work all day who will be here during the day, how will we get around if I can’t drive. My husband doesn’t drive but has said he will learn but now I feel guilty about that as he is absolutely petrified of learning and if it wasn’t for me he wouldn’t have to.

Also people who say to me you must have had symptoms on and off before and could dr’s not pin it down. No nothing until March this year when I noticed weakness in my left arm and had to make more of an effort with my left leg going up stairs, nothing like that had ever happened before. Two MRI;s later diagnosed first week of April so all happened very quickly.

Sorry for the rather waffling post. Just a bit emotional. I did see my specialist between Christmas and New Year and no new lesions after being on Avonex since August. Specialist will see me in 6 months unless I need to see him before hand so trying to cling to that being good news.

Tracey

Big big hugs indeed. You know you can type all your worries on here and be supported. Don’t ever think you’re alone. Obviously that doesn’t help practically but hopefully it will help a bit emotionally xxx

Hi Tracey,

This happens to all of us, but you will get past it, you will still have wobbles every now and then, but it’s a natural reaction to being told you have an incurable progressive disease. You’ve had quite a shock, getting the news out of the blue like that, I think that lots of people have the same experience as you - I had symptoms since I was 12 and was finally diagnosed when I was 28, so it wasn’t such a shock for me, more a relief to know that what was wrong with me had a name, and I had been right in what I thought it was, but it’s still a huge thing to try to get your head around.

Although the disease is progressive, you may not get any worse, and you may not have to stop driving - I’m 36 now and, apart from a period when I couldn’t see due to optic neuritis, I’ve not had to stop driving. It’s probably a good idea for your husband to learn to drive anyway though - once he starts, he may not find it so daunting. But it’s not the end of the world if he can’t drive, there are other ways to get about. Try to cross bridges when you get to them, they may never appear, but worrying about them makes them more likely.

So, big deep breaths, dust yourself off, and face tomorrow with a smile on your face - you can do it, you’re not alone.

Luisa x

Hi Tracey, it is an inviter of major wobbles and worries this MonSter. I went through the very same thing about two years ago, shortly after being diagnosed, I had similar feelings and experiences. The first thing to say is that you are not alone on this journey, on the forum here there are lots of great people with good support and advice. Do you have an MS Nurse to talk to?

The long and short of it is that having MS is not the end of life but a change. A wee reference point you mention about one event usually not meaning MS - a clinically isolated event - well, sometimes there are other things that are taken into account. Regardless, take care, go easy lass, you will not be on your own - sound off, shout, scream, we all need a space to let it out, let it be here.

Willie

Hi Tracey

Try not to worry about things that might never happen, enjoy each day as it is. I have an old work colleague in her 60s with ms + she still goes to the shops most days, no stick or chair she has mainly eye problems and fatigue.julsiexx

Yeah I have a brilliant MS Nurse and I have her email, tel and mobile number and Specialist I can access fairly easily and quickly and my GP is amazing and one of her close friends has MS so she has a bit more idea than some.

I don’t know where it came from but feeling a little better now. So pleased I joined this site.

Hi Tracey, I was diagnosed out of the blue as well, summer just passed, I had no idea before. I know its such a big shock and its horrible to not know what the future holds, but as others have said you just have to take each day as it comes and not worry about problems before you have to. Take care xx