I don’t have a consultant so I can’t comment on that. When I see my MS nurse for my annual appointment if there is anything new to report she sends a letter to my GP and a copy to me. Also if I ring her and she recommends something ie medication she will send a letter to GP and I get a copy.
Ring your nurse and tell her the situation you are in and that you may need a report off her for retirement purposes. I am going through what I hope will result in Medical retirement. I think the “pension people” will get in touch with my GP and MS nurse directly for reports on my health but if they want me to obtain these then I will simply ask them. My GP signs my sick note so he knows what’s going on and I have rang my nurse to put her in the picture. They must get dozens of requests for this kind of thing every year it’s us who don’t the process.
Like you I haven’t spoken to my GP about my day to day problems, he can’t do anything so why bother. Like you I am now concerned that because I have always just got on with it there is not much of a record about the problems I face daily. They are professionals though and I have faith that they know the kind of Patient I am in that respect and that they also know I am genuine and am not trying to work the system.
When I could no longer cope with my work I went to my GP and told him about the problems I was having and why I wasn’t coping at work. He asked me what I wanted him to do, it stunned me a bit as to how to answer so I said that in an ideal world he would put me on the sick and work would sick retire me, he then asked how long did I want sick note for. He actually laughed and said what would I have done if he had refused, said he knows I am genuine and that he is happy to keep me on the sick for as long as it takes. I haven’t seen this Doctor for about ten years. I think all medical people keep each other informed of whats going on when they share patients.
Now is the time to start telling the professionals how you are progressing and how you are finding day to day living and working getting more difficult.
Hope that helps.