Do you think I'm right?

MS is inflammatory:

Multiple sclerosis (MS) is aptly named for the many scars it produces in the brain and spinal cord. A sometimes fatal, often debilitating disease, MS features autoimmune inflammatory attack against the myelin insulation of neurons.

I wake myself up with the loud noise/snore that happens as I ( I assume) start breathing again

Possibly if there is something interfereing with the flow of air accross your palate causing you to snore but, as I said, getting back to sleep with SA would not be a problem :relaxed: Lots of things might disturb your sleep. You might just be sleeping badly at the moment for no real reason If this remains a problem go to see your GP. What does your OH say about your snoring (if you have an OH of course).

Solved? Well the sleep apnea/snoring may have been… Went to doc and I have very bad tonsillitis plus oral thrush. Antibiotics and nystan prescribed. It may have been the reason behind the high ESR results but I still need to be retested in two weeks. Off work for now, plenty of rest and hope the pills do their thing!

MRI is scheduled for the end of January.

[quote=“Kizzybeads”]

Solved? Well the sleep apnea/snoring may have been… Went to doc and I have very bad tonsillitis plus oral thrush. Antibiotics and nystan prescribed. It may have been the reason behind the high ESR results but I still need to be retested in two weeks. Off work for now, plenty of rest and hope the pills do their thing!

MRI is scheduled for the end of January.

[/quote] Ooooooohhh! I am obviously an Ear Nose and Throat specialist and didn’t know it☺ Very glad that there was a simple explanation for your sleep and breathing problems and hope that you feel better soon.

Most importantly, this whole worry is an example of why you really need to stop overthinking things and step away from Dr Google. Dr Google is a really rubbish doctor and is prone to diagnose people with a simple headache with inoperable brain tumors! Why he wasn’t struck off years ago I don’t know!!!

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Seriously, you are not going to get/begin to get any answers until January so you need to try to stop worrying - easier said than done but otherwise you will make yourself really ill nò matter what your underlying medical condition is. Trust me, I’m NOT a doctor :relaxed:

Hiya…I hope everyone had a good Christmas xxx

Doc wants me to repeat the blood test this week, now I’m hopefully free from infection.

Still got all the symptoms as described in my OP…but I have my next MRI at the end of January.

Memory problems and confusion seems to have worsen so I’m getting into the habit of making a list of stuff I want either ask or tell the neurologist.

This week I’ve been having bouts of ghosting double vision combined with left eye pain and a filmy feeling.

Saw my neurologist for the second time. The first time was rather shaky as I felt fobbed off and so I made a complaint about him to PALS. He was rude and patronising. Anyway the second time round was very different. He apologised for the way he had spoken to me.

Today was all about nerve conductivity testing on my hands, feet and legs. He didn’t go into the findings there and then but my gp would get a letter recommending that I am put on to an anti-epilepsy drug … I’m assuming this is going to be gabapentin.

Hes also recommending a neck and head MRI.

Update… Been on gabapentin since 9/3 and was told to increase it after a few days. So I did and I felt horrible. Muzzy head, dry mouth, absolutely knackered and irritable, so much so I got sent home from work. Came home and slept for hours, still getting sparks in my feet ,hands etc. I know I need to give it time so I shall be taking 200 mg at night rather than during the day.

I had the results back from another MRI…brain and cervical spine, this time. No significant abnormalities. In a second letter I’ve been booked in to see my neurologist in August. I’m still getting the same symptoms as before, nothing has changed there…even with being on up to 300mg of gabapentin a day.

Yesterday I noticed a huge bruise on my wrist. I’ve not knocked myself and it’s not painful. I looked up side effects and there it is. I’m due a review with my gp so I’ll mention this to her.

What’s the next step? A lumbar puncture? Blood test?