Hi,
I have something strange going on with my legs at the moment. They still work, albeit a bit weak and pins-and-needley, but I have this feeling that somehow they’re ‘not mine’. Sometimes this seems to be because they’re not picking up sensation as they previously would have, meaning I feel like I’m walking along almost on air.
Does anyone else get anything similar? It’s quite surreal!!
Jep
Hi Jep,
Just posted about this on the New diagnosis board tonight!
I had experience of this last week when going up the stairs, I carried on walking even though I couldn’t feel anything below my chest! It was such a weird experience and just felt like my upper body was floating! When I got to the top of the stairs, I stood still and feeling came back, probably within 10 seconds.
Fizzy x
This does seem to be common with MSs. It’s certainly happened to me.
Wendy x
I always get tingling and fuzzy feelings in my legs very strange…
Jan
Hi
I have similar i am walking along and cannot feel my legs and cant quite work out how i can still walk with this weird sensation. I mentioned it to my neuro and he said it sounds like UHThoffs phenomenon which when you read up about this is very common in people with MS
Fiona
Oh UHtoffs…that`s a new one and another name to add to our lists!
I often feel as if my legs arent mine. I am a full time wheelie now and it sounds daft, but I sometimes have to check to see how my feet are positioned, as I could swear theyre doing something quite different.
Its the altered sensations bit of this monster!
luv Pollx
I pasted this from a previous post:
It sounds a bit like something Oliver Sack’s mentions in his book The Man Who Mistook His Wife For His Hat. The sense of our body - where it is, what its doing, is called prorioception. If it goes wrong it leads to a feeling of dissociation or disembodiment, so that limbs feel in the wrong place or disconnected. I think the main coverage is in a chapter called ‘The Disembodied Lady’ .
http://www.google.co.uk/url?sa=t&rct=j&q=chapters%20man%20who%20mistook%…
Yep, I get this too, basically most of the time…I’m not dx yet.
Wendy
yes i’ve had that from the very early days and it’s not gone away.
it’s hard to explain to other people.
sometimes i can feel my legs but they don’t feel like they belong to me.
we’re a weird bunch aren’t we?
carole x
ps just before diagnosis we were in greece and my legs went ever so strange. i described it as being like giraffe legs. i don’t know why but that was the best description i could come up with
Thanks so much for the replies! Yes, it’s really hard to explain to other people, I think they often think I’ve gone crazy.
I get the Uhthoff’s thingummy with my left eye, where the vision goes all blurry when I get hot, so maybe it ties in with that. What’s strange though is that I seem to get the strongest feelings of this disattachment when I’m sitting down?! Heh. Sometimes you just have to laugh about the symptoms because they seem so absurd.
Jep 
Thanks so much for the replies! Yes, it’s really hard to explain to other people, I think they often think I’ve gone crazy.
I get the Uhthoff’s thingummy with my left eye, where the vision goes all blurry when I get hot, so maybe it ties in with that. What’s strange though is that I seem to get the strongest feelings of this disattachment when I’m sitting down?! Heh. Sometimes you just have to laugh about the symptoms because they seem so absurd.
Jep