Im sorry to write all my issues on the forum,but I have no one to explain things to or ask for help…
After all the upset yesterday and the system let me down and reduced me to tears yet again.No help offered.
A woman called Jackie had rang me,she asked me a few questions but this all changed then and she was more concerned about the welfare of my child.Anyway I have decided NOT to ask for help if its going to cause all this upset and problems.I will wait until I see the Neuro then ask him for advice…
However she must of been reading my files and she mentioned I was diagnosed with MS twenty years ago.I was like HELLO I told the old GP and the new one it was on my files and if they read my files properly they would of seen it written there.
How can a doctor not listen to a patient,all this is so confusing to me.My body is changing,my life is changing,I dont remember simple tasks,I dont remember things that happened yesterday or last week…
All this is pritty frightening…
Im in pain all the time,my legs are numb again and vibrating.
I feel I am being pulled in all directions,getting no help in getting me mobile again.Im stuck at home unable to go out anywere.
I felt so ashamed of myself earlier,I was speaking to one of my daughters friends mother,I dont know her well at all.I was slurring my words and I felt so ashamed,she just looked at me as if to say freak.If it happened with someone I know well we would of laughed it off,I would of made a silly noise and pulled a face…
People make me ashamed of my illness…
Sorry for being a pain in the rear…
Gosh I usaly a happy bubbly person,I am the joker in the pack.Now I feel so low I have losy my fight,I cannot fight this anymore.All I want is help and its clear I am not getting any…