Hi, I am not diagnosed as MS yet although I have a tentative “Clinically Isolated Incident” diagnosis from 2013.
I would like to know more about the pattern of relapses in others so I know how many relapses I might have had myself.
In 2009 - while training for a marathon I had a lot of neurological issues while training for the race - visual snow, vision loss and blurring, also a lot of tingling but these were always while running and I thought it normal. During the race I had some nerve pain in a private area which I had to go lie down in an ambulance for a while for it to pass and after the race I had a headache lasting 6 weeks.
In 2012/13 I had a lot of nerve stabbing pain in my chest and visited A&E twice for it as it was a very high pain level. It was paroxymal and lasted just a second at a time but kept attacking, lasted for 6 weeks.
Later in 2013 I had a neurological episode, my face which had been drooping slightly for 1 year then started drooping a lot more. Also I had a lot of tingling, numbness in face and upper body, parasthesia and visual issues similar to before. This was investigated and brain MRI was clear. so was called a clinically isolated incident lasting 6 weeks.
In 2014 I had another attack of nerve pain in chest and fingers, but no other neurological symptoms occured with it so I never thought this was a neuro episode/relapse.
In 2016 and 2017 I had bad headaches that would last 1-8 weeks at a time during the spring and summer however these are being called tension headaches. I had no other neuro symptoms during these.
This year I had a very similar attack to 2013, facial drooping and tingling, numbness in upper body and face. Months prior to this I had the same ‘teeth tingling’ only when I exercised which was constant during this attack. This time I also had some incontincy issues too and it started with a very bad headache. Due to the symptoms I again worried about MS and saw a (useless) neuro.
I am hoping to get a spinal MRI to rule out MS completely but until then, just looking at my symptoms and history does it seem like these are all relapses? Or does MS always collect up the previous symptoms when it attacks? and the chest pain and headaches must be something else?
Thank you for your time and patience in reading this