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Continuous unsteadiness sensation

Hello,
I’m new to this forum and was wondering if anyone experiences a continuous unsteady sensation that is felt on one-side of your face/head. It’s easily confused with vertigo & lightheadedness, but, it’s neither of those. It’s not optic neuritis as my vision is fine and I have no pain. My doctor believes this symptom is related to heat sensitivity but I don’t have worsening symptoms (vision, tingling & fatigue) typically related to heat sensitivity.
And, the most concerning issue is it doesn’t go away. It’s with me all the time.
It’s been very frustrating as no matter how many ms specialists I’ve seen over the years no-one can tell me what this is.

If anyone has some insight please let me know.

Thank you

Will