Aw, it’s like coming home, you all make me so cheery!
I think there will be a name for us one day, the neurologist said (and I quote) “the problem is the brain is such a complex thing we barely know anything yet…you basically need 95 out of 100 people to turn up with the same set of symptoms and then we can give it a name and you’ll be diagnosed with something.”
Would be boring to be run of the mill surely!
You asked about whether I’m going back on my meds Tree - I went back on yesterday as the pain was difficult to bare at night, I thought I hated the woozy feeling but I slept like a log and feel fab today so yes I’m back on them. They also said I had to go down from 125mcg thyroxine to 100mcg because my stimulating hormone was only 0.7 but I felt so knackered I’ve upped it again. My stimulating hormone just doesn’t work, they’ll have to accept that. Originally my thyroid level went right down to 1 so lowering my thyroxine is a crap idea, it does nothing by itself.
Not sure who to see next - think I’ll just get on with life as best I can, which is easy when well but sure I’ll change my mind if I get very ill again.
I’ll try to catch up with all your stories soon Dxx