In September 2022 I was prescribed Avonex injections (once a week) and Modafinil tablets twice a day.
Re my Avonex injections.
In December 2022 I got an urgent series of phone calls to stop taking the Avonex with immediate effect as my blood test had irregularities.
After many phone calls I was told to restart my Avonex injections but I needed to see the specialist and have blood tests every 2 months.
My last blood test was in early December 2022 and my February appointment was never organised.
Many phone calls since mid February 2023 and I now have an appointment at the end of this month but still no blood tests.
Re my Modafinil tablets
My specialist wrote to my GP asking him to prescribe repeat prescriptions as and when needed.
I contacted my GP Surgery on multiple times from October 2022 requesting this repeat prescription. Each time I was told to do this request online. Several months later I got a text and E-mail stating that I had to set up a shared care agreement. Not sure how i do that but following another on line request specifically referring to the consultants letter and getting a copy of my medical records it appears that the surgery have just sat on the consultants letter and done nothing. Sent an e-mail to the head of practice seeking an explanation but then got a text back threatening to have me removed from the practice register. Put a formal complaint in to the practice on the 17th January 2023 but I have still not received a reply.
the surgery is run by the Modality partnership of which is getting scores of complaints on our local social media.
I have now been without this medication for several months.
Any suggestions would be appreciated.
Avonex gave me a low neutrophil count from time to time, but that never seemed to bother anyone much and it always drifted back into normal range in the end. I suppose it just depends how severe the effect is in individual cases and exactly what is amiss in your blood tests. . As for modafinil, I haven’t been on that for years either, but it was always a bit tricky to get GPs to prescribe it, even before it got so popular on the black market. I’m not surprised that things are even worse now. Which is a pity because it is the only thing that works.
I thought Modafinil was no longer prescribed for MS, due to lack of evidence that it actually worked.
Another of those ‘research shows that it doesn’t work’ studies that contradicts personal experience. They do the same thing with antidepressants and painkillers and now even humble amitriptyline, Lord help us. Such studies always remind me of the joke about the old economist who grumbled:’It’s all very well in practice, but does it work in theory?’ They just make it harder than necessary to get a scrip for stuff that works without offering an alternative. Rant over. 
Fair point, and to be honest, I don’t really care if it is a placebo, as long as people find it helps.
Prof G does offer an alternative, although not one I have much faith in and will be sticking to the gym.
“A recent study from the US shows that amantadine, modafinil and methylphenidate make no difference. In comparison, mindfulness therapy has been shown to work in several MS fatigue trials. So why don’t neurologists prescribe mindfulness to more of their patients? There is also an expanding evidence-base that mindfulness therapy helps depression, anxiety and insomnia.”