Hi, rr here.
I’m mostly housebound due to difficulties with moving around and almost passing out. For a while walking makes me want to fall asleep but it has developed into almost passsing out territory, with very diffficult breathing, dizziness, my legs can go. It started a couple of years ago but has developed into most days that i can’t get beyond twenty meters or so without feeling extremely woozy. recent mri showed second bit of damge to pons…. echo came back as normal so die chest xrays. I have issues with high bp and elevated heart rates in these episodes. I’m just typing here as i dont seem to be getting nearer to answers and a plan for management, neuro rehab have ditched me as they dont know how to help. Cardiac Autonomic Dysfunction seems to tick all the boxes but i have 8 months until i see a neurologist again. Maybe folks here can offer insight? I was diagnosed in July last year.
Thanks in advance.
Darren