I'm having a brain stem relapse and it's effecting my breathing.It's so exhusting trying to breath normally,to get a full breath.
I've had iv steriods last week so I know it's early days and hopefully they will calm it down.
But in the meantime.....well I'm stuck,feeling like carp and it's the breathing problems and the pain that goes with it that I think is the worst.
I've got some diazapam which is helping a bit,not that I can keep on taking them,so just wondered has anyone else had a braistem relapse? Any ideas or advice on how to deal with it? I'm trying breathing exersices which helps a bit,but not much.
I was a bit pole-axed when I saw the nurse on Weds and she said it was the brainstem under attack,had steriods that day and also been given the option of Tysabri so had a lot to think about and of course didn't as any questions.
I suppose I'm just looking for a bit of infomation and support if anyone has had one like this before.I did have one years ago but that was only vertigo,this one is the full monty,eyes,breathing,swallowing,pain loss of control etc so it's sort of new teritory for me,I can't believe how ill I feel,it's really taken me by suprise,I'd got used to all sorts of symptoms,but this is knocking me for six.
Any ideas or help or advice would be great. I hope this makes sense,it's a bit hard to think clearly.Thankyou to anyone who can help,it's really appreciated.xxjo