Afternoon all!
Just been for botox injections in my spasming left arm ie bisceps muscle . It is so painful…mostly at night.
It’s the first time I’ve had this in my arm. It didnt hurt, as I had expected it to. Doc said it may need more, as they use a small dose initially.
So we’ll see.
Boudsx
You should start to notice effects within a few days. You may also get the Botox ‘flu’, so be aware of that too - it might feel like Covid. A small number get generalised spread i.e. generalised weakness.
Hi,
I’m seeing the Dr about Botox in my calves later this month.
Fingers crossed it works for you and me.
Jen
update; well last night I wasnt wakened by a usual left arm spasm…but first thing, my arm was heavy and sore until I got it working.
I can touch my right shoulder and there is hardly any pain like before.
I know it’s only 20 hours or so, since the injection… but yeh, so far so good.
Boudsx
I completely understand why your sister in law needed to get away from some of the stress that MS brings to everybody involved with it. I get very frustrated with the way social care funding works, I feel that I am being punished, along with many others in the same boat as me, for working hard all my life and paying my way.
At the moment my big project is to get as many things changed over to being Alexa compatible as possible. I have the three main lights, and my electric heaters on Alexa, next I want to buy a smart TV which will use Alexa to switch it on off and change channels for me. I am constantly dropping the remote controls for the TV that I have which means I have to wait for someone else to appear and pick them up for me. I am also grateful that I can call numbers on my contact list of my phone if I need help, again I am constantly dropping my mobile phone Which is not ideal!!.
Yes I have two carers on each call for hoisting purposes. I had a through floor lift installed plus a ceiling hoist upstairs, you can see where my savings have been spent!! Downstairs I have a mobile hoist.
I am 69 and have had MS since I was approximately 19 years old, it was first relapsing and remitting but has now progressed to secondary progressive MS. This forum site is extremely good and you can get advice on all sorts of subjects to do with MS. Some of the regular members of the site are absolutely priceless in their knowledge and experience they have and will always offer to help.
Hi Dograbs.
I think you may have added your comment to the wrong post.
However I am interested in your story.
You sound to be getting everything sorted and future proofed!
I am also 69 and have had PPMS for 24 years. I am a full time wheelchair user, am hoisted for all transfers, using ceiling hoists.
Happy to chat with you anytime.
Boudsxx