I’ve been waiting since July for a date to have Botox injected in my bladder. I’d resigned myself to the fact that it was unlikely to be before Christmas now. But then the postman came…I have to go in on Monday 22nd December.
I don’t feel as if I can cancel it as I’ve been ringing them frequently to chase it up. I’ve heard of people who say it gets worse before it gets better so it looks as if Christmas may be a bit different this year.
Sarah x
Hello Sarah, I’ve not heard of this approach before now. It seems eye-wateringly close to Christmas day though. I wish you all the good wishes I can muster and hope it goes as well as it can. We have to have a lot of resilience with this beast.
Big hugs (((((((())))))))) Steve x
Hi Sarah, that is close to Xmas… but I’ve heard it can be a great help. This could be the best Xmas present ever!!
Please let us know how it goes.
Fingers crossed for you… really really wish you all the best.
Pat xx
Hi Sarah,
I hope as Pat says it will be your best Christmas present!
Sending you good wishes, let us know how it goes,
Nina x
Fingers crossed for you Sarah ((((hugs))))
Pam x
Just giving you an update.
Everything seems as if it’s going well!. The worst bit was the waiting. I had to be there for 7.30 but wasn’t taken down to theatre till 11.45. I was so thirsty as I hadn’t ben able to drink since 6am.
Immediately after the procedure I had 3 accidents within half an hour and wondered if I’d done the right thing. Once home I was very “leaky” for the rest of the day but since then no problems at all! I was worried it might hurt at first but it didn’t, not even when I catheterise (which I was doing twice a day before hand) The rest of the time I’m going normally just a lot less frequently than I used to go.
So, yes I think it may be my best Christmas present and I recommend it to anyone.
Happy New Year.
Sarah x
Sarah that’s great news!!! What a fab start to the new year.
Well done you… that was a brave thing to do.
All the best for 2015.
Pat xx
That’s wonderful Sarah…very brave of you. I was offered this a few years ago but confess I found the prospect a tad scary! I’ve since started LDN which has improved my bladder problems tremendously.
Nina x
So pleased for you Sarah, well done.
Wishing you and everyone a good 2015.
Pam x
Brilliant news Sarah, when I think of botox I think of plump lips and no wrinkles I bet your bladder looks 20 years younger, were you tempted to ask them to do a lip job whilst you were under? He he hope you don’t mind the humour!!!
Pauline xx
That’s brilliant news 2015 will be better for you
My sister has PPMS as well as me and is unable to catheterise due to a prolapse and I will tell her.
My suprpubic has transformed my life. We do suffer with this bl##dy illess don’t we
Good news keep us up to date on things, how long will it last?
DON
Hahaha made me laugh Pauline! xxx
I reckon I’ve got the youngest looking bladder in the UK!!!
I’ve got a review appointment at the end of March. I was told it could last 6-8 months. I’m not sure how you get a repeat procedure. No doubt I’ll find out in March.
Sarah x
Well done Sarah x
Not something I would do but good on you, I am desperate to try LDN but damn neurologist doesn’t think it helps. Nether does the tabs he gave me bladder nurse told me to stop it, asked gp for LDN but he’s not sure he can give it but he’s doing some research such a fab gp 
Good Luck hope it works out xx
Alysea, most people have to get LDN privately as very few GP’s or neuro’s will prescribe it. This is because it hasn’t been through the trials although it’s been around since the 1980’s.
The good news is that it is quite cheap.
Look at the The LDN Research Trust website for more info. They have names of doctors who will give a private prescription. It’s all done online. The prescription is sent to a chemist (most people use one in Glasgow) and the chemist sends you the LDN through the post.
Hope this helps.
Pat xx
It does help thanks Pat xx
Its been around for so long why can’t they just give it us LOL
how has it helped you that do take it? And how do you deal with stiff legs/hands?
Thanks All xx
Hi Alysea,
I get my LDN on a private prescription as Pat has said…it’s annoying that we can’t get it from our GPs but for me it’s well worth the cost. I think it’s about £19 for approximately 56 days supply.
Nina x
Hi again Alysea, I don’t take it. I tried it and made me feel worse. Not everything works for everyone. Many many people with MS find it helps a lot so it’s certainly worth a try.
Pat xx