Something weird has been happening to me for a while and I thought I would ask whether any of this has happened with any of you…
For about a month and a half, my left hip has been hurting - more so when I am in the cold. I feel like it’s old age getting to me (I am 27)… I have ignored it or just tried to stay as warm as possible. A few times when I am sitting I feel a little uncomfortable so have to keep moving to make me feel ok. Also, my left teeth have been sensitive to anything cold for a while. No ice cream, yoghurt or even cold water - if it does touch it for whatever reason, it does hurt.
About a month ago, I got hit down with an ear infection. After finishing off my antibiotics, a few days later I began to feel a lot of weakness on the left side of my body especially my arm. I was trying to hold out my arm in front of me and it just kept dropping. While I was holding a few things, without realising I was dropping them and so on. 5 days of experiencing this I finally called my MS nurse to let him know what’s going on. He asked me to give in a water sample to rule out a water infection. All came back clear. A few days later, I got my strength back and all was well (thankfully)
Now… I woke up on Monday morning and got out of bed. Only to have complete weakness/I don’t know exactly how to explain it so I will try my best - I felt my left side was in a bit of pain, like I was losing my balance, like I couldn’t walk. I felt stiff, as if my left hand was going and wanted to stay in a claw position and I had to keep bending down. The worst part of this was I was desperate to use the toilet and felt like I was going to wet myself. Not being able to feel the floor under my left foot, I somehow managed to make it to the toilet - a success. However, I was still in some pain and in a claw/bent down position. Note that all of this happened within a few seconds - but it felt like it was never ending.
Getting out of the car after being stuck in traffic for about an hour - I felt the same. Sitting in the car on that same Monday… I felt like I was going into a body lock position - it was awful. Tuesday, getting out of bed and the car was the same but for the rest of the day I was ok. Wednesday, Thursday and even this morning it was the same. Looking at the pattern, it seems like the more ‘comfortable’ and ‘relaxed’ I am in a certain position for a long time, I feel the same symptoms coming and going all lasting a few seconds each - but they are the most frightening few seconds ever as I feel my body is going into a lock and I am forever going to stay like that
I saw my MS Nurse on Tuesday (not for this but I did tell him about it). After doing a neurological examination of me and my previous drop arm symptom - he said all is well and it is not a relapse but there is some tissue on my neck which is scarred so my reacitons on the left side were more ‘brisk’ than the right side. I’m not an MS specialist nor do I think i’m clever - but I feel as though I am actually having a relapse. He doesn’t think so. Again, he asked me to give in a water sample to rule out an infection. I have not heard from my doctors as of yet and will give them a call soon to see if they know anything yet.
I feel scared getting out of bed/the car/off the sofa every day now thinking this is never going to get better - I make out like nothing is wrong though and walk as normal because I want a normal life. While I have these short ‘episodes’ - I feel very cold and i’m continously shaking.
Has any of this happened to you before? Am I doing anything wrong?