Hi. Im 28 and I have been told for the last year I have CFS. (This was after being told for years my symptoms point to the fact I have children). I went to see my doc a couple of months back (May) and she sort of freaked out a little and sent me for an urgent appointment with a neurologist. (Before then, I was just told “you are fine, keep up with the low dose of meds I have given you” even though I have told them I am getting worse). I was told the wait to see one was 8 weeks, I got to see mine in 2 weeks. He looked quite worried aswell, especially when I couldn’t even walk from the chair to the examination room, which was about 10 feet away, without my walking stick. I am off for tests in a week or so - eeg, ecg, nerve tests and brain scans - and I am starting to get really worried as I looked up the symptoms of MS this morning and they sound very close to home.
My uncle had MS, but he wasn’t a blood relative, he was my mums step uncle. I watched him get worse over the years until he could barely walk and I am so scared that is going to happen to me as I have 3 children who depend on me (they are between 2 and 8). I am grateful that my husband works from home as I can not do houeswork - apart from most of the cooking and some of the washing up. I’ve been told that I sound like I have had a stroke when I am tred because I slur really badly. My ears ring so badly they feel almost numb and detached if that makes sense and there are other symptoms I can connect with.
What should I expect from the tests and beyond?