My name is Amy and I’m 37, I don’t have a diagnosis of MS but I did have epilepsy as a child and started having seizures again (but complex partial seizures rather then tonic clonic ones) in 2015, I also have chronic migraine and I’m on medication for both. Last year I started having twitches and muscle spasms in arms and legs, which didn’t happen that often to start with I told my neurologist and he made a note of them).
These past couple of months these have increased, a lot to the point I am having it happen multiple times a day, it is usually my arms of legs that will jerk, but sometimes my shoulders and my back seizes up (painfully) sometimes when I’m walking. Within these last two months I have also started having new symptoms which are;
My hands shaking, a lot (to the point my husband said that it looked like I was swearing at him lol) this can go on for half an hour. It is one at a time and weirdly enough if I move my opposite hand it stops, then I stop moving my other hand and it starts again.
I can’t feel around my face and I can’t feel my finger tips or my toes (I actually dipped my finger into hot milk to test this… yes I’m nuts lol but I didn’t feel anything). I have tingling going across my face in a line which goes from my ear, across my nose to the other ear. Sometimes both of my hands feel like I’ve been sitting on them, numb/tingles and cold.
I am really really tired, I wake up really tired and it gets worse throughout the day and when the tiredness gets worse, everything else gets worse too.
I keep choking, on food, it feels like food gets stuck but sometimes I randomly start choking when I’m not eating or drinking anything (this has gone on for a few years but I’ve only recently started thinking it may be connected) and I also wake up choking during the night.
I have vertigo, usually in the morning and dizziness throughout the day.
These symptoms are all very different from the ones I have when I have a seizure,which feels like deja vue and it feels like I’m falling but once the seizure finishes I feel fine, but these other symptoms as well as being entirely different are constant.
I have spoken to my GP and she said it is neurological and she has doubled my medication and told me to contact her again in a month but sooner if it gets worse and if it doesn’t stop she’ll refer me back to the neurologist for tests (she didn’t say what tests). It hasn’t stopped even with the increase of medication (I’m leaving it a bit longer to give the medication time).
I know its impossible for people to say on a forum if they think it is MS and I’m would ask that, but what I haven’t mentioned to my Dr is that my mum has recently being diagnosed with auto-immune disease, not MS and her symptoms are very different from mine but would this make it more likely for it to be something like MS? I didn’t mention incase she thought I was being a hypochondriac saying I thought I had MS because my mum has an auto-immune disease but if there could be a link I’ll mention it to her when I next call her.