Following on from something I have just read on another thread, I am really interested to hear if anyone has, or has ever had, a diagnosis of ME/Fibromyalgia. I was diagnosed with ME a long time ago, and moe recenlty with Fibro, but feel very different now to how I did then. I had none of the tingling etc, although, looking back I did have some weird sensations, but at the time I didn’t really take much notice of them.
Looking back now, and bearing in mind how I’m feeling these days, I am wondering whether I ever had ME or whether it was something else all along.
ME is one of those diagnoses that is given when nothing else fits. I was always slightly sceptical as to my diagnosis, but in the absence of any other explanation, accepted it and got on with my life as best I could.
My mian concern now is that the Neuro I am due to see next week (first appointment, following abnormal brain MRI) will see the previous diagnosis of ME/Fibro and put everything down to that without doing any more investigations. Then, if I insist on further investigation, I will be labelled as a hypochondriac. Such a horrible situation, but am expecting it and preparing myself for a battle, as I know I’m not right and that it’s different to how it was years ago. I just hate it when doctors see the ME and just shut down and attribute everything to that.
Interestingly, looking back now I can see that my symptoms would come and go for months at a time, leaving just an underlying fatigue and slight balance issue. Each time the symptoms would be slightly different, and each time they disappeared the fatigue and balance issues that lingered seemed to be slightly more prominent.
I would be really interested in hearing from anyone else with a diagnosis of ME who is now experiencing other things, or has a diagnosis of MS or something else.