Hey,
Is there anyone on this group from Oldham or surrounding areas?
Hi I’m over in Salford so not a million miles from you! 
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Hi,
No not that far away 
Can I ask whats been your story so far?
I was diagnosed with ME back in 2013 because I was so fatigued. Then in Jan 2020 I developed pins and needles in my fingers, which I and my gp thought was carpal tunnel. Then august 2022 I couldn’t walk in high heels for the life of me and I tripped up when walking into a building wearing them for a wedding and I broke a bone in my foot. After that I developed pins and needles in my feet and a sandy feeling between my toes. My GP had a trainee in who did me a full neuro exam and called the senior gp on duty in, who sent me to A&E for an urgent mri thinking I’d ruptured a disk or something. Had an mri that evening but it was negative but they referred me to a neurologist the next day. Who then ordered mri scans of my upper spine neck and brain which clearly shows the lesions. I have 11 on diagnoses at the end of October 22. How about you?
Your case sounds abit similar to mine. I was diagnosed December 22. We had gone to the Lake District Dec 19. We had walked up a hill and i just froze. My husband an daughter had to walk me back to the car, it was like i bad drank a full bottle of whiskey. It didn’t happen again until the following July. I had gone for a walk with my daughter and dog but my legs wouldn’t let me walk snd the same happened again. Nothing happened until Sept this year. I was walking to work and walking the dog. I must’ve walked 62 miles in that week. I had fallen though on the way to work. It was like a silent sniper had shot me. I just thought it was because i was wearing sandals. I was struggling to walk, my legs felt heavy but weak. My manager booked me to have a private MRI scan for the brain, neck and spine. He found lesions on my brain. I had my lumbar puncture last week and having the full MRI and contrast done tomorrow. How do you feel in yourself? I’m shocked as always been so active. Are you on treatment now? I can’t stop googling things, i know you shouldn’t.
Im doing ok, I’ve seen the MS nurse and had a dmt discussion with the neurologist and agreed a treatment going forward. I’m single and live alone plus I had adjusted to life following my ME diagnosis in 2013, so the dx of MS was a change in a letter (S from E) and a whole lot of treatment options opening up for me. The 3 different neurologists I’ve seen have confirmed I do not need a lumber puncture, as I have clear evidence and doctors records which show clear incidences of relapses. I was given a course of steriods on the day of dx and I’ll be booked in for an MRI with contrast in 6 months, then annually to monitor me. Plus I can phone the MS nurse if I need any help or guidance. If you want to dm me let me know and I’m happy to exchange messages. Everyone I’ve spoken to has told me MS affects everyone differently, some one called it the ‘snowflake’ disease, there are no two identical cases. If you’re doing your reaserch stick to the MS society and the MS trust websites better to get verified info than random stuff online.